dissociation

Asserting myself, Part 2

~ KJ ~ 6 Comments

I woke up the next morning, not looking much better than I did the night before. The swelling migrated downward, pushing my eyes outward towards the sides of my face. I looked like one of the aliens you see in movies. I put my glasses on and brushed my hair in front of my face. No one could see me. Though I couldn’t see anyone else, either.

My legs were shaking as I sat in the waiting area of my therapist’s office. My therapist came out to get me like usual. I kept my hair blocking my face, hiding the disaster underneath.

I don’t know how I thought I would get away with it. My therapist noticed the different style right away. She asked me if I was hiding. I told her I was. She thought I was hiding to hide. She didn’t know I was hiding the disaster on my head.

My therapist continued to prod. She needed to see my face, and I needed to be able to see hers. I told her I was scared. She said it was safe, that I didn’t need to hide. She asked if it was related to what happened on Monday, but I told her it wasn’t.

My therapist kept telling me it was okay. I told her I was afraid of getting in trouble, I was afraid of her sending me away. I started crying. She said she wasn’t going to send me away, and that I wasn’t in trouble. I finally told her I was hiding something on my head.

Now my therapist understood what was going on. She asked if it was a wound I was hiding, and I nodded yes. She asked if I could pull my hair back so she could see. I hesitated, took a breath, and pushed my hair over. I felt overcome with shame. I felt like a failure.

She assured me she wasn’t angry with me. My anxiety started to subside. She asked how it happened. I told her I didn’t remember it all. I told her everything that happened before. I told her that I finally stood up for myself. I finally did what my therapist had been encouraging me to do for so long.

But it failed. My therapist could sense my disappointment with the situation. I had this false sense of hope that I would assert myself and that it would work, and all would be right with the world. Instead, I asserted myself and it failed. I put all of the blame on myself.

My therapist reminded me that I can’t change other people’s behaviors. It’s not my fault that my roommate didn’t understand. I did what I needed to do. I stood up for myself.

Don’t let this be a reason to stop standing up for yourself. Yes, it didn’t work this time. That doesn’t mean you stop doing it. It won’t always work out this way.

As we continued to talk about it all, I noticed my therapist wasn’t focusing on the fact that I completely self-destructed. She focused on the positive. I finally asserted myself. One thing I have been struggling with for so long, and I overcame it.

Sure, I could have done without the likely concussion. I could have done without the bruises and scrapes, and the half-blackened eyes. I could have done with the horrible headache and eye pain. I could have done without that all, but I can’t change that it happened. I can only work through it and try to prevent it from happening again.

We discussed what led up to the issue, and how I could work on changing it. It’s difficult once I get in that place, to get myself back out. The reason I asked my roommate to stop is because those words are reminders of things my mother said to me. When I hear them, it triggers parts of me. I start to get confused, not realizing that it’s my roommate and not my mother saying those things. Younger parts can’t tell the difference. It causes chaos that I would rather not deal with (and I shouldn’t have to).

I know all of the things I can do to distract myself. I know how to ground. That’s not the problem I have. I just don’t know how to put that all into practice when I am already on the edge.

I wish my experience ended up a little less painful. But damnit, I asserted myself. Let’s focus on that.

Asserting myself, Part 1

~ KJ ~ 11 Comments

I have an issue being assertive.

Standing up for myself was never a possibility before. I had to bow down to my mother for 29 years. I had to stand there and take whatever she threw at me. I couldn’t fight back. I couldn’t be assertive, because my mother never viewed me as a person.

I’ve had to learn how to stand up for myself. You would think, at 30 years old, I would have figured it out on my own. But no. I am learning now what I should have been taught as a child: assertiveness.

It feels so wrong. It feels so dangerous. If I had stood up for myself while I was living at home, I would have ended up in pain. Even though I’m not at home anymore, it’s been difficult to get over that gut reaction. But I’ve been working on it.

There was a situation on Wednesday. I was eating my dinner. The cat used the litter box, which didn’t bother me because I couldn’t really smell it (certain smells don’t affect me much, and the smell of shit is one of them). My roommate started spraying air freshener, which then made my food taste like chemical and flowers. I kept eating, because I promised my therapist I would eat dinner every day and I knew I needed it. Someone had commented that the smell was better than smelling poop, and I said not really. It was the truth.

Apparently that warranted name-calling, because she then called me a name. I asked her to please stop. She persisted and called me something else. I felt the noise in my head increasing, so I got up, threw away my food, and went upstairs without saying anything.

This wasn’t the first time it happened. I knew it was going to happen again. I knew that me just saying STOP wasn’t enough. I went outside and grounded myself. I told myself I was not at home anymore, that she was not my mother, that I can stand up for myself and be okay.

So I took a deep breath and came back inside. I was doing to do it. I was going to be assertive.

And I did it. I told her when I say stop, it means stop. I told her when I’m telling her to stop, it’s for a reason. I told her she needs to respect my boundaries. I told her this wasn’t the first time, that it’s not fair and I can’t tolerate it anymore.

She didn’t absorb anything I was saying. She immediately defended herself, saying she didn’t keep calling me names, she used adjectives (as if that was any better — I don’t understand). She made it seem like I was in the wrong, saying that she was offended by my attitude and I should be sorry (as if that warranted being called names and adjectives — again I don’t understand). She told me to move out if I didn’t like it. She didn’t care at all about what I was saying or feeling.

I got frustrated and went to my room. I was angry. I was upset. I was walking the line between present and past. I felt myself slipping. Then I dissociated, and came back to find a disaster on my head.

My head had a lump the size of a softball. There was blood on my desk from the cut on my forehead. My head was scraped down the center, and bruised across the top and the side. I looked like a disaster. I couldn’t feel anything.

There was no way I could hide this. This is it. My therapist is surely going to send me away. I went outside, sat on my steps and smoked the last of my cigarettes. I could have stayed out there all night if I had more.

I may not have felt any pain, but I certainly felt the panic. I broke my therapy contract. And I don’t even remember doing it. All I could think about was how mad my therapist was going to be when I showed up at session looking like I did. I ruined everything. I was going to miss school. I wasn’t going to be able to finish the book. I was going to end up locked away somewhere.

And none of this would have happened if people just listened when I say stop.

Knocking on doors

~ KJ ~ 3 Comments

I’m always wrong.

KJ, that’s not true.

Yes it, I’m always wrong. I can’t do anything right.

Who told you that, KJ?

My mother. She says that all the time.

She was wrong. And she’s not here now.

You don’t understand.

What?

I know that I am away from her, but I think she’s still here.

Like she’s inside your head?

No. Like she is here, near me. Right outside. I know she’s not here, but I feel like she is. I know I’m not there, but I feel like I am. She’s still going to hurt me.

By then I was crying. I felt like I was speaking things that didn’t make any sense. It doesn’t make sense for what I know to be so vastly different from what I feel. If I know my mother isn’t here, why can’t I just go on and not be afraid anymore? Why am I still living as if she is right outside my door?

I was crying because I was tired. It’s exhausting being on high alert all of the time. It’s even more exhausting when you know the danger isn’t real anymore, but as much as you try to fight it, you can’t switch off your fear.

People don’t understand what it’s like. I say I’m scared of my mother, they say well she’s not here.

If only it were that simple. It doesn’t matter that, logically, I know my mother doesn’t know where I live. It doesn’t matter that, realistically, her physical presence is lacking. My mind has not caught up to my physical reality. My mind still thinks my mother is here. My mind still believes I am in constant danger because I spent 29 years of my life in constant danger.

I tried to downplay it to my therapist. I told her I was okay. I didn’t want to tell her just how strong my panic was. I didn’t want to tell her I was afraid of opening the door and seeing my mother there. I thought to myself, I just need to get home, and I’ll be okay.

Then I left my therapist’s office, and went downstairs to leave the building only to find that I had been locked inside (it was a holiday — someone in another office must have stopped in and locked the main door on their way out, not noticing their were other cars in the lot). My therapist had already started session with another client and I didn’t want to interrupt. I had nothing else planned for the day. I thought to myself this is okay, I can just wait on the bench outside of her office until she’s done.

I was okay for ten or 15 minutes. Then the panic started to set in. I am trapped in this office building. I can’t get out. I tried to steady my breathing, I tried to stay calm. But the fear and  panic continued to increase. I started to cry. I curled in a ball on the end of the bench and that’s when it all went south. I went from I am trapped in this office building to I am trapped inside my room. Mother locked me inside and I can’t get out.

By the time my therapist finished with her other client, I was a crying, dissociated mess. I could barely breathe. My therapist sat down on the bench with me and tried to help me breathe. She knew where my mind was. Do you know where you are KJ? Look around. I am here with you. You are safe.

I sat for a while, trying to convince myself that I was not at home. I apologized to my therapist (like I always do).

“Why didn’t you ask me for help, KJ?”

“I didn’t want to bother you. I didn’t want to get in trouble.”

“You won’t bother me. And you’re not in trouble. You can just knock on my door and let me know.”

Except it’s not okay. Because I can’t even knock on doors. Bad things happen when you knock on doors. Mommy never wants to be interrupted.

Bad things happen when you knock on doors because my mind still doesn’t realize my mother’s not behind those doors anymore.

Schizophrenic

~ KJ ~ 4 Comments

“I don’t have DID today.”

It’s a line I give my therapist often. I don’t want to talk about my parts or the inner world or the dissociative chaos that is my life. I don’t want to talk about how broken I am.

But that’s not enough for her. She always has to push me further. Then I shut down. Completely. Because that’s what any perfectly normal person would do, right?

I know it’s not good to deny my reality. I know that by denying my DID, I am denying my parts as well. I know that makes everything worse. But I still do it. Deny, deny, deny.

Then, one time, my therapist asked, “well, how do you explain your symptoms?”

I thought for a minute, wondering what symptoms she could be referring to, since I have so many.

“Maybe I’m just schizophrenic.”

The voices I hear, they are not my parts. They’re just hallucinations. Those feelings of depersonalization? That’s just distorted thinking. My memory problems? The cognitive deficits of schizophrenic disorders. It all fits.

Except it doesn’t. The voices I hear are my parts, the depersonalization is part of my dissociation, and my memory problems are because my parts hold those memories for me. I know that already. I’ve known that since the beginning of my diagnosis. So why do I continue to deny it?

My therapist seemed perplexed by my answer. Why would I want a disorder likely more stigmatized, difficult to treat therapeutically, more debilitating to some? “You would rather have schizophrenia?”

“Yes,” I replied.

“Why?”

Then the truth came out. “Because then I wouldn’t have to acknowledge all of the trauma.”

Schizophrenia is largely chemical, an imbalance of dopamine that is treated with antipsychotics. It can happen to anyone.

DID, on the other hand, is caused by severe trauma. There’s no chemical imbalances, no pills I can take to make my symptoms go away. I am broken, a type of broken that can’t ever be fixed the way it should be.

So yes, sometimes I wish I had schizophrenia rather than DID. Sometimes I wish all of the abuse I went through was just a delusion. Sometimes I wish I could just take a pill or three and quiet the voices and be able to get through the day in peace.

But I can’t.

Denial is making it worse, but accepting the truth is just too hard.

We didn’t kill daddy

~ KJ ~ 3 Comments

I have been handling my father’s death quite well. I didn’t really grieve at all. I think the majority of my grieving was done long before my father died. I didn’t need any time off, I didn’t need to memorialize him in any way. He’s dead. Alright then. I’m going to go home and watch TV now.

With that being said, I tend to forget that I am not just me. I am many. While I am handling my father’s death just fine, younger parts are not handling it well at all.

Someone thinks the police are coming for us. Every noise, every knock, every police car we walk past on the way to work is the police coming after us. Why? Because a little one thinks that he killed daddy.

I have to stop and explain that we did not kill daddy, that daddy was sick for a long time and that’s why he’s gone. It’s not our fault he’s gone. We didn’t do anything wrong. The police aren’t coming after us. We are not bad. And I go through the same speech so many times and the paranoia is still there, the need to internalize blame is still there.

And then another part keeps asking to go the heaven to be with daddy. So then I try to explain that we can’t go to heaven because we are here on earth, and we have things to do here first. I really want to say that daddy is not in heaven, because daddy is a horrible person, but I have to remember that I am dealing with innocent younger parts whose beliefs don’t always align with mine. They don’t understand things on the level that I understand. They don’t really understand loss the way I have had to learn to understand it.

I’m already exhausted as it is, and this inner chaos just adds to it even more. I’m not good with people. I can barely handle myself, let alone a bunch of other parts. I can’t soothe myself, let alone soothe others. I don’t know what else I could say to them to help them understand what really happened. I don’t know how to keep it together for them when I can barely keep myself together.

How do I parent children when I have no idea how to parent?

Smile, it ain’t that bad.

~ KJ ~ 16 Comments

On my way to therapy this morning, a man I had never met before stopped me as I was walking and said “just smile, it ain’t that bad.” Part of me wanted to slap him in the face, but I chose instead to keep on walking so I could get to my appointment on time.

Smile. I have smiled before, in the few moments of genuine happiness. But happiness is not something that comes easily to me. I’m not the kind of person that can force fake emotions. I can’t just smile if I’m not really happy. I am aware that a lot of the time, I look sad, miserable, and worried. Because I am sad, miserable, and worried.

I’m not smiling now, because my mind is racing with anxious thoughts about school. What if it’s too hard? How am I going to get the text books I need? What if they find out about my DID?

I’m not smiling now, because I’m worried about how I’m going to pay my rent next month, how I’m going to stretch my grocery budget so I can feed myself until September, what bills are going to have to be put off for next month, and what credit card I can max out so I can get my bus card.

I’m not smiling now, because I’m exhausted from work, a job I am lucky to still have because I get so stressed out sometimes that I dissociate and have trouble getting my work done.

I’m not smiling now, because I’m tired of constantly living in fear of my mother. I’m tired of having to calm younger parts and convince them we are safe, when sometimes I can’t even believe that myself. Fear takes away any smile.

I’m not smiling now, because I feel so alone. Even when I am surrounded by people, my ability to trust others is so shattered that I live in a constant state of fear of people.

I’m not smiling now, because I sat through my therapy session earlier this morning and cried as my therapist talked about inpatient hospitalization. Because I am a mess. I’ve been dissociating so much that I don’t even know when and if I am ever fully here anymore. Last week was so bad, that people were actually scared of me. And I don’t remember a thing.

I went to therapy last Thursday and barely remember what happened. Apparently it was obvious that I was not present. That seems to be the theme of my life lately. Not present.

I saw the concern on my therapist’s face. I tried to listen to what she was saying, but my mind was just going to other places.

The sinking feeling in your heart when you know your best isn’t good enough.

The hopelessness you feel when you realize you can’t be helped.

All of these things went through my mind. I’m not good enough at life. My therapist can’t even help me. She wants me to go to a hospital, and they’re not going to be able to help me. Then what? I can’t even miss work. I can’t afford it. This is a lose/lose situation.

Despite my doubts, I understand where my therapist is coming from. She is concerned that one little thing will happen and push me off the edge. Next month, when I start school again, it just may be too much for me to handle. I am on a roller coaster ride and she cannot ride with me. She can’t be with me all day, every day, to deal with issues as they come up. And even though I am (barely) managing that on my own, it’s not going to be that way every time. I am headed for a breakdown.

So no, I can’t smile. And yes, it is that bad.

He’s not there

~ KJ ~ 2 Comments

Many times over the past few weeks, I’ve seen my father.

It’s not really him, of course. He doesn’t know where I am. But my mind seems to be playing tricks on me to make me think that it is him. I’ve seen him on the bus, at the mall, and on the street. Different men, each strikingly similar in appearance to my father.

It happened earlier today, as I was walking through the mall to get to the bus stop. I could have sworn I saw my father sitting in a chair in the middle of the mall. The man had the same hair cut and color as my father, the same weird slouch, the same sunglasses. I scurried past and continued to look over my shoulder, making sure he wasn’t following me. The man, a total stranger, but in my mind, he was my father.

Each time it happens, I go through a weird back-and-forth reaction process. I  panic on the inside. At first, I let myself get lost in the panic and let it simmer, leading to inner chaos and unsafe feelings. Now, I try to immediately reassure myself that it is not him, that we are safe here and no one can find us. It’s not a cure, that’s for sure, but it keeps me from totally withdrawing or dissociating out of fear.

On the other end of that fear, is the desire to run up to these men and ask them if they are my father. It is something I have (thankfully) not managed to give in to doing, but the want is still there.

It doesn’t make much sense to me, simultaneously fearing someone and wanting to approach them. I don’t understand where that impulse is coming from. It feels like a confused child’s way of reaching out to her father. And I am a rational, 30 year-old adult who does not want to speak to her father ever again. What a contradiction.

Is it paranoia? I don’t know. Maybe there are just a lot of men that look like my father. He’s not atypical in the least, so it’s not a stretch to say there are many other similar men out there. But why haven’t I noticed them before? Why is this happening now, all of a sudden? And why do my reactions have to be so complicated?

Polyfragmented

~ KJ ~ 13 Comments

I have been avoiding my DID again. Sometimes consciously, sometimes unconsciously. In therapy, the topic has barely been brought up because I always have so many issues going on, that managing my DID drops down on the priority list.

I think that it is clear, given the events of the last few weeks, that DID is a problem, and a problem that isn’t going away.

My therapist used a metaphor of a daycare to explain what was going on inside. There are some daycare centers that are clean, organized, running on a schedule, and everyone knows what to do. Then there are daycare centers that are a mess, with no planning in place, children running around screaming, and poop on the walls (I contributed to that part).

My system is like that second daycare. There’s no order, just chaos. My parts are running around, confused and out of control. The caretakers have left the building. It’s a mess. My system is a mess. But it doesn’t have to be, and I know that. I am just so incredibly exhausted from life that I don’t have any energy left to work on myself.

My therapist asked about my long-term goals, if I wanted integration or to live as a multiple. The choice was completely up to me, and my therapist has worked with people successfully on both sides. I hadn’t really thought about it enough, because I still like to wake up and tell myself I don’t have DID, so then I won’t have to think about these things.

I just want to be normal, but I’m pretty sure that ship has sailed at this point.

At one point, my therapist asked me how many parts I thought I had. “Dozens, hundreds, thousands?”

My immediate (denial) reaction in my head was well, I don’t have any parts.

I found myself say out loud, “hundreds…”, but not as an answer. I was surprised that hundreds was even an option. Why does this woman think I have parts at all?

Before I could finish my thought statement, my therapist confirmed, “Hundreds? Okay.”

She said it like she wasn’t surprised at all that I would have hundreds of parts. She confirmed it like it was a normal, expected answer.

I quickly jumped on the defensive. “No, no, I don’t have hundreds of parts. I’m not polyfragmented. I’m not that bad.” Polyfragmented DID results from prolonged, systematic, severe trauma. I didn’t go through that. My life wasn’t that bad. I don’t have any parts. I am not broken. Having that many parts means you are just that much more broken. I’m okay.

I can’t help but wonder why my therapist was so quick to accept my statement as reality. Does she think I am so broken? Does she know more than I do?

I don’t want to be fragmented. I want to be whole.

Flee, Part 4

~ KJ ~ 5 Comments

As I was walking home after my therapy session, I put my ear buds in and turned my music up as loud as I could. Music is my method of release. And I needed to release.

The first song that came on  was Lie to Me (Denial) by Red. It’s a Christian rock band. Even though I’m nowhere near Christian, I like the music and tend to relate to a lot of the lyrics. This was no exception.

Although it was a song I heard many times before, one part of the song stuck out at me:

All your secrets crawl inside
You keep them safe, you let them hide
You feel them drinking in your pain to kill the memories
So close your eyes and let it hurt
The voice inside begins to stir
Are you reminded of all you used to be

All the pain you fed
Starts to grow inside
It lives again and you can’t let it die

Well, then. If the timing of that song wasn’t on point with what I just went through in therapy.

Hiding secrets. My whole life was spent hiding secrets, and here I was, still hiding secrets. And my parts are hiding secrets, too. They’re holding their own memories, safeguarding them from me and from the world. Until the time they come to the surface. Why is this memory now coming to the surface? Why am I being reminded of a past I don’t want to remember?

I think there’s still a part of me that believes if I just ignore it, it will go away. I made a similar mistake when I first started managing life with DID. I ignored my parts, hoping they would just go away. But ignoring them only makes it worse. They get louder. They get out of control, and then life gets chaotic.

If I ignore these memories, they won’t go away. They won’t die. They will only keep causing more and more pain. And I don’t need any more pain. I’ve had enough.

Then I started to wonder if it was fair to my parts to keep us from processing the trauma. I have to think I am experiencing these memories for a reason. The reason why, I don’t quite know, but I’m sure there has to be a reason. I’m not even sure the reason really matters.

It’s weird. In a way, dissociation itself is your mind’s way of fleeing from reality. You can’t physically escape the danger, so you mentally escape it. My parts took over for me to protect me. Maybe I don’t need so much protection anymore. Maybe they need to be protected now. I don’t know.

I wish I wasn’t still running from the truth. Why can’t I find my voice? Why can’t I say out loud what happened to me? Why is it so hard? And why does it hurt so much? I know why it hurts so much. Because speaking the truth out loud makes it real. And I don’t want it to be real.

I want my father to be a real father. I’ve always rationalized his physical and emotional abuse, normalizing it as something fathers just do. He was better because he wasn’t abusing me like my mother was. Maybe he just didn’t know. Maybe he didn’t understand what was going on. All of these years, I held on to that belief that he was just oblivious. He would’ve helped me if he knew.

I can’t hold on to that hope anymore.

Because as my mother was abusing me, I turned to him, crying, and he turned away. He turned away. He knew what was happening.

How do you turn away from someone in pain? How could you turn away from your own child?

My heart is still hurting. I still don’t want to admit it out loud. I don’t want to admit rejection. That is what hurts more than what my mother was doing to me. And I don’t know how to get over that.

I don’t want to be stuck anymore.

I’m just a passenger

~ KJ ~ 6 Comments

I have spent a good portion of the last few weeks as a passenger in my own life. I’m not in control. I’m not in the driver’s seat. I can see everything that’s going on, but I have no control over it. I’m just an observer. I’m just a passenger.

This happens a lot more than I care to admit. Yesterday, I realized I was (literally and figuratively) out of my own control. I found myself involved in a situation in which the ways I was acting and speaking were not my own. I knew it was me, and I could see and hear everything that was going on, but my responses were not me. As everything was going on, I felt like I was sitting next to myself. I would say something, and then I would ask myself where the hell that just came from. I would never say this. I would never do this. I don’t want this. Yet there I was, saying it, doing it, and apparently wanting it.

It concerned me, because this situation is something I very much don’t want to be involved in. I told myself, maybe I’m just crazy.  I don’t even know what’s going on. I don’t even know how to explain it to someone else because I don’t even understand it.

I wanted to bring it up to my therapist, but it felt so awkward and uncomfortable. Oddly enough, I had a therapy assignment from our session earlier in the week – the stages of therapy. I looked over the sheets and crossed out the things I didn’t have issues with, and circled the things that I felt I needed help with. Next to relationships, I wrote “making questionable decisions”. I was hoping my therapist would read it and ask about it so I didn’t have to bring it up myself.

And she did. So I explained what happened yesterday. I told her how I felt disconnected, but not entirely disconnected because I still had full awareness of what was going on, but I just didn’t have control. And I thought she was going to think I was crazy and not making any sense, but she didn’t. She understood what was going on, and suspected what I had suspected as well – another part coming through, a part with completely opposite wants. Great.

I sort of have been hiding some things from my therapist, not just about relationships, but with other things as well. Not purposely, I just didn’t feel like they were important. But most of the things I had been pushing away seemed to come up with that assignment today. One of the things I crossed out was ‘drugs’. She asked about it. I said I haven’t used in a while, and that I even threw away all of my pills last month. Then she asked why. I don’t really know why, I just know it happened during one of my regular crises.

Then she asked if I remembered doing it. No. I hadn’t remembered doing it. I only knew because I went to throw away my trash weeks ago and noticed a bunch of pills fall out from my bin and into the trash bag. I don’t remember doing it, or why I did it. But clearly I did it.

And as we went on, I realized there was a lot of occasions that I don’t remember. I’ve just been telling myself it’s because I’ve been so tired lately, that’s why I can’t remember shit. But it’s more than that. And that worries me. I know I’ve been under a lot of stress, especially in the last month. But it’s concerning because I am in the midst of making some pretty considerable life decisions, and I don’t know if it’s 100% me making those decisions.

I have been in a dissociative denial.