Writing about PTSD

I haven’t had much energy to write as many posts as I want to. I want to be able to get out all the shit that’s been in my head. There’s a lot going on, and a lot that will be going on in the next few weeks, as I reach 1,000 days of freedom in April.

A few weeks ago, I was offered an opportunity to writer for the APTSDA, the American PTSD Association. While I still write about DID for HealthyPlace, writing about PTSD is different, and I figure it is an opportunity to reach a different group of people.

My first piece published yesterday. It can be found on aptsda.org, or directly through this link: The Flashbacks You Can’t See.

It’s not much. I write so much that sometimes I’m not really sure what to write about, and I get tied up in the thought that maybe my experiences aren’t the “right” ones. Yet the more I write, the more I read from others that they have experienced the same.

I will update with more soon. Hopefully.

You’re so young

But you’re so young.

I heard that exact phrase at least two dozen times over the last two weeks.

It wasn’t the first time I heard it. I’m sure as hell it won’t be the last. But hearing it over and over and over again day in and day out made me want to scream out loud. I didn’t, of course. I only screamed on the inside.

I know that the people saying it weren’t saying it to be negative, but they didn’t realize that every time I heard that phrase, it was like a tiny jab to my already damaged heart. I know I’m young. You don’t need to remind me. I know I’m sick. You really don’t need to remind me.

I can’t blame them, though. I’m 31 years-old with a disease that affects the elderly. They see my COPD diagnosis and they don’t understand it. And then they want to ask questions. How much did you smoke? How long were you a smoker? I can never seem to tell them I only started smoking after I got sick. I can never explain to them how I grew up and lived in a (literal) toxic environment, how I spent most of the last 17 years in and out of hospitals. It wasn’t just the cigarettes that gave me COPD. It was my life.

It’s hard for many people to realize just how much trauma affects the body. I see it all the time. I’ve never met a person with PTSD who wasn’t struggling with at least one type of physical problem. The effects of trauma aren’t just on the mind.

My body started giving up long ago. It wasn’t just about the broken bones, the bruises, the damage it withstood on a regular basis. Every last bit of energy is spent trying to survive. After awhile, the body can’t fight anymore. There’s no way to win the war. So things break down in ways they shouldn’t, way earlier than they should. Broken mind, broken body.

But most people don’t understand the connection. They don’t want to hear about the trauma, about the battle you endured that brought you to this point. They want hard facts spoken in brevity.

I don’t bother with facts. I don’t bother with the truth. Just bad luck, I guess. That’s what I tell them. As if luck has been the one and only cause of my destruction. Luck took away the cartilage in my knee. Luck caused me to get COPD. And now luck has led me to a heart problem that has yet to be solved.

Fuck luck. Fuck genetics. I want people to realize the connection to trauma. I want them to stop telling me I’m so young, and start asking how I really ended up here. I want somebody to stand up and realize that I am breaking, not because of luck, not because of genetics, and not all because of my own doing. There was and is something more here.

I want to be able to tell them the truth. My heart is weak because it’s tired. Thirty one years of my life has been constant stress and fear. I’m surprised it still beats at all, to be honest. Why hasn’t it given up on me yet? Why does it try to quit and then get knocked back into beating?

And just when I thought it was over, the appointment was done, the surgery was done, the questions were done — it happened again.

The manager of cardiac unit called me the following day to check and see how I was doing post-surgery. I told her everything was okay (except for some mild pain), and then there was an awkward silence. Then I heard her again. Do you mind if I ask?  You’re so young, why did you have this done? We’ve only ever had to do this with older patients.

I really wanted to say wait, you mean not every 30-something has a heart monitor implanted into their chest? Instead I told her the basic passed out a few times, they found an arrhythmia, completely downplaying the fact that I passed out way more than a few times and I had a collection of issues that included more than just an arrhythmia.

She’s right. All these people are right. I am too goddamn young to be dealing with this shit.

But I am dealing. I am living life as if nothing is wrong. Because that’s how I learned to live.

And that’s what got me here.

Clean

I had to have a stress echocardiogram yesterday. I’ve been having chest pains, and my primary doctor wanted me to see a cardiologist to rule out anything heart-related (my lung issues put me at a higher risk for certain heart conditions). My PCP is aware of my PTSD and my issues with medical stuff and warned me that it wasn’t going to be easy for me to do. She even said that I may have to be sedated to get through it. I thought she was joking. Now I don’t think she was joking at all.

When I went to my cardiology appointment a few weeks ago, I wasn’t expecting anything major to happen. I thought the cardiologist was going to tell me I was okay and send me on my way. I think he may have thought that, too, when he looked at my record. A 30 year-old with no high blood pressure, no diabetes, and no high cholesterol. No risks. But then he started asking me questions, and by the end of the medical interrogation, he told me I had a lot working against me. Smoking, drug use, medications, family history, and past overdoses were all fucking me over in that moment. There was enough concern to schedule more testing.

I didn’t really know what was going to happen aside from getting hooked up to wires and running on a treadmill. It didn’t seem like much, so I tried not to stress about it. I didn’t even bring it up in therapy the day before because I wasn’t expecting anything bad to happen. I thought I had it all under control.

I didn’t even make it to the first part of the test before breaking down and crying.

A nurse took me to the room and gave me a gown to change into. I knew I had to do it, but it was difficult. My layers of clothes help me feel safe, and now I had to let them go. I stood there, completely naked from the waist up, trying to wrap myself in the gown and holding it closed. But the nurse had to get in. She had to put patches on my skin so I had to uncover.

I stood there, completely vulnerable, trying to hold myself together. I felt the skin of her hands touching the skin on my chest. I wanted to tell her to stop but I couldn’t. I couldn’t move. I couldn’t speak. I froze. Then she reached her arms around me. I felt her against my body just like I had felt my mother just years ago. And I lost it.

I felt so sick. I couldn’t say a word. I just cried. All I could think about was my mother. All those times I would stand there and let her touch me and I never said a word. I never told her to stop. I never made her stop. I must have wanted it. 

How sick am I to have let this happen. Does she think I wanted this? I wonder if she know. Does she see how disgusting I am? Does she know what I’ve done? 

I don’t even really know all that went on during the test. I was so lost in my mind that my body became automatic. I know I stopped crying after a while. I finished the test. My heart was okay. My cardiologist was happy. I remember him asking me if I was excited to have a perfectly healthy heart, and I couldn’t answer. All I wanted to do was run to the nearest bathroom to throw up. And I did.

I needed to wash the filth off. All I wanted to do was scald my skin in the hottest water. But I was afraid to go home, because I knew I wouldn’t be safe being alone with my memories. So I took the bus to clear my mind. I fiddled around on my phone. I went to the movie theater to distract myself, only to end up crying in the bathroom stall for half an hour instead.

I wandered and cried for hours until I finally ended up at home before dark. I got in the shower and cried even more. I washed myself a dozen times but it wasn’t enough. I wanted to rip off all of my skin and scrub away all of the filth hidden underneath. I felt it everywhere. I just wanted it to go away. But it wasn’t going away.

I couldn’t eat. I couldn’t sleep. I needed clean. I couldn’t clean my body anymore, so I started cleaning my surroundings. I washed everything down with vinegar. I scrubbed the baseboard. I spent hours wiping every surface. I got a garbage bag and threw away everything that was dirty. Dirty clothes. Dirty shoes. Dirty knick-knacks. I needed everything to be clean. I rid myself of everything dirty because I couldn’t get rid of the dirtiest thing of all: me.

I can’t sleep because I can’t stop thinking. I can’t eat because my stomach feels so sick. I’ve taken four showers today and I still feel so disgusting.

I don’t think any amount of showers in the world would make me feel clean right now. I just want to feel clean.

Robot

I am constantly on high-alert. I am (painfully) aware of things that other people don’t notice, or don’t think twice about: sounds, people, cars, everything. I know that is related to my PTSD.

In some ways, it benefits me. I had someone following me in the dark a couple of weeks ago and I noticed right away and took action.

In other ways, I can do without the hypervigilance. It’s tiring. I am constantly questioning every little noise and every movement. It makes it impossible to focus.

You would think that, with being so aware of my environment at all times, I would be aware of what is going on within me. If I know the outside, I should know the inside, too. It seems like common sense. It seems like it should be that way. But it’s not for me.

Yesterday, I was putting labels up at work. I started noticing splotches of reddish-orange. I thought it was just marker or something, so I tried to rub it off, but that just seemed to spread it more. Then I noticed my hand, which had the same color splotches on it. Then I noticed my finger, entirely covered in it. It took me a minute to realize that it wasn’t marker on the labels. It was me.

I was bleeding. Profusely. I didn’t even notice I had cut my finger. How, I don’t know. I didn’t feel a thing. No pain. Nothing.

I could understand if this was a one time thing. I could rationalize it by saying that I was just too tired. But this wasn’t the first time something like this has happened. Years ago, I leaned over a burner while it was on and burned my abdomen. I didn’t feel anything. The only thing I noticed was the smell of my burning shirt. I’ve injured myself countless times and not felt any pain.

Why can I notice everything going on outside me, but I can’t notice anything going on inside me? I notice the blood on the paper, but not the cut on my finger. I notice the smell of burning fabric, but not the burns on my skin. It doesn’t make sense.

It scares me. How can I know when something is wrong if I can’t feel anything?

It frustrates me. People ask me how something feels and I just don’t know. Isn’t it hot in here? Well, I guess it is hot since you asked. But I have no idea. What does this pillow feel like? I don’t know, but since I can see that it’s silky, I’ll take a guess and say that it’s soft. I use context clues so I can seem normal. The truth is I really have no fucking clue how anything feels to my body half the time.

It worries me. You could cut the head off of my body and I feel like I’d still function the same. I don’t feel connected at all. There is no mind-body connection here.

I feel like a robot. Robots can’t feel, and neither can I.

Knocking on doors

I’m always wrong.

KJ, that’s not true.

Yes it, I’m always wrong. I can’t do anything right.

Who told you that, KJ?

My mother. She says that all the time.

She was wrong. And she’s not here now.

You don’t understand.

What?

I know that I am away from her, but I think she’s still here.

Like she’s inside your head?

No. Like she is here, near me. Right outside. I know she’s not here, but I feel like she is. I know I’m not there, but I feel like I am. She’s still going to hurt me.

By then I was crying. I felt like I was speaking things that didn’t make any sense. It doesn’t make sense for what I know to be so vastly different from what I feel. If I know my mother isn’t here, why can’t I just go on and not be afraid anymore? Why am I still living as if she is right outside my door?

I was crying because I was tired. It’s exhausting being on high alert all of the time. It’s even more exhausting when you know the danger isn’t real anymore, but as much as you try to fight it, you can’t switch off your fear.

People don’t understand what it’s like. I say I’m scared of my mother, they say well she’s not here.

If only it were that simple. It doesn’t matter that, logically, I know my mother doesn’t know where I live. It doesn’t matter that, realistically, her physical presence is lacking. My mind has not caught up to my physical reality. My mind still thinks my mother is here. My mind still believes I am in constant danger because I spent 29 years of my life in constant danger.

I tried to downplay it to my therapist. I told her I was okay. I didn’t want to tell her just how strong my panic was. I didn’t want to tell her I was afraid of opening the door and seeing my mother there. I thought to myself, I just need to get home, and I’ll be okay.

Then I left my therapist’s office, and went downstairs to leave the building only to find that I had been locked inside (it was a holiday — someone in another office must have stopped in and locked the main door on their way out, not noticing their were other cars in the lot). My therapist had already started session with another client and I didn’t want to interrupt. I had nothing else planned for the day. I thought to myself this is okay, I can just wait on the bench outside of her office until she’s done.

I was okay for ten or 15 minutes. Then the panic started to set in. I am trapped in this office building. I can’t get out. I tried to steady my breathing, I tried to stay calm. But the fear and  panic continued to increase. I started to cry. I curled in a ball on the end of the bench and that’s when it all went south. I went from I am trapped in this office building to I am trapped inside my room. Mother locked me inside and I can’t get out.

By the time my therapist finished with her other client, I was a crying, dissociated mess. I could barely breathe. My therapist sat down on the bench with me and tried to help me breathe. She knew where my mind was. Do you know where you are KJ? Look around. I am here with you. You are safe.

I sat for a while, trying to convince myself that I was not at home. I apologized to my therapist (like I always do).

“Why didn’t you ask me for help, KJ?”

“I didn’t want to bother you. I didn’t want to get in trouble.”

“You won’t bother me. And you’re not in trouble. You can just knock on my door and let me know.”

Except it’s not okay. Because I can’t even knock on doors. Bad things happen when you knock on doors. Mommy never wants to be interrupted.

Bad things happen when you knock on doors because my mind still doesn’t realize my mother’s not behind those doors anymore.

Come back to me, sleep.

I’ve been out of it the last few days. I’ve been able to function (somehow) on very little sleep.

I had a weird experience Monday night. I don’t really know if it was a nightmare, or a flashback, or something else. I don’t remember many details about it; I have a feeling I blocked it out of my mind. I do remember being confused between what I was seeing and where I was in the moment.

I remember someone coming through my door. This was the moment I “woke up” and was stuck between the vision and reality. I felt like I was actually there in my mind, yet consciously aware that I was actually not there at all, if that makes any sense. When I saw someone coming through my door, I told myself that was impossible because I had locked my bedroom door and no one could get in.

Then I felt everything shaking. I thought my room was shaking. Is this an earthquake? Is there a truck outside? What is happening? Then I looked at my hands and realized that I was the one shaking. My whole body had been trembling.

I looked at the clock. I checked my phone for the date. I tried to remind myself that I was safe. Eventually, the shaking stopped, but that was the end of my sleep. I stayed in bed the rest of the night staring at the ceiling, trying not to jump at every little noise.

I got up and went to work, and somehow made it through the day. I fought through the exhaustion. As I rode the bus home, I felt myself wanting to just go to sleep right there. I told myself I would try to go to bed early. Even though I had some tasks that needed to be done, I couldn’t do them successfully on such little sleep.

By 6 o’clock, I was in bed. I was so exhausted, I could barely keep my eyes open. I thought for sure I would easily fall asleep. But I didn’t. Hours and hours flew by. I could not get myself to sleep. I felt constantly on edge, jumping at every little noise outside, wanting to hide at every noise inside.

I sat in my closet, hoping I would feel safe enough to fall asleep there. That didn’t work. Nothing worked. I think I was afraid to go back to sleep for a reason, something connected to what I experienced the night before.

Two days now, I was running on empty. I filled up with coffee and sugar, hoping the rush would be enough to get me through the long day. I couldn’t wait to get home and just melt into bed. I got home, settled down, and tried once again to go sleep. A few hours went by before I finally nodded off. And then I woke up an hour later. I calmed myself back into sleep and woke up after an hour (again).

This cycle continued throughout the night, and I never got more than an hour of sleep at a time. But at least I got sleep. It was something.

I’m still feeling the effects. I’m still exhausted. I have a lot to write about, but no energy to write. I am hoping tonight will be better for me.

I remind myself I am safe dozens of times in hopes that it will just sink in. It hasn’t yet.

Welcome to the closet

I woke up early this morning and found myself snuggled away in the closet, with blankets and a pillow.

I don’t remember a lot of yesterday night. I spent most of Tuesday night crying, which carried into Wednesday morning crying. That was followed by work and intermittent crying, followed by leaving work early and more crying.

Then I found myself wandering the streets crying in the rain. Rain is good for hiding crying, because everyone just assumes it’s the rain on your face. I mean, you can’t really tell tears from raindrops. So I just let it out and no one noticed a thing.

And then I found my way home, feeling completely broken. Took a shower to get rid of the chill in my bones, and ended up holding myself up against the wall of the shower, crying.

I managed to eat, despite feeling like absolute shit. And then I retreated to my room, where my thoughts were going to horrible places. 

I thought about going home. My place of origin home. I didn’t think things could get any worse, anyway. I didn’t see any options left. I wanted to go home because I secretly wished that my mother would kill me. It would be much easier that way. I wouldn’t have to do it myself. What else do I have left? Nothing.

Later on, I heard knocking at the door. I started to panic. I locked my bedroom door and pushed my punching bag over in back of it, barricading myself in. The fear that my mother had found me was overtaking me. Then I started to lose it. And then the next thing I know, I’m laying in the closet.

The closet is not a comfortable space for a 30 year-old. But my other parts aren’t 30 years old, so they don’t know that. They just believe it’s safe in there, or safer I should say. I don’t believe they or I will ever feel completely safe anywhere we go.

Now I’m dealing with absolute chaos on the inside. Fear and panic have set in. Parts are scared that we’re going to see our mother. It’s absolute fucking chaos.

I’m running damage control and trying to convince everyone that we are safe, which is hard for me to do because I’m not even sure that we are. And even though I’m present, I’m still struggling with having a foot in the past. Any little noise or startle and I start to lose it again.

I’m exhausted.

Layers of Protection

No one ever asked why I wore a bathing suit under my clothes. It was quite visible through the white polo of my private school uniform. I wasn’t going swimming in the middle of winter. But for years, I would wear a bathing suit over my underwear and under my clothes, and no one ever questioned it.

Why? Because it helped me feel protected. In my child mind, I foolishly thought these extra barriers, these layers of protection, would prevent me from being abused.

So I stuffed myself with wads of toilet paper. That toilet paper was going to protect me. She can’t put anything inside me then. She’s not going to be able to hurt me.

And then I’d wear two pairs of underwear, sometimes three. Then, my bathing suit. Then my pants. Then two or three shirts. I needed all of that to feel protected. I needed to be covered. I never wanted to be without my protection.

But those layers didn’t work. She still hurt me. It just took a little more effort.

I never gave up trying, though, even to this day. I always wear two pairs of underwear. I always wear at least three shirts, no matter if it’s the heat of summer.

And when I am feeling vulnerable and afraid, I go right back to my childhood methods of protection.

Since I’ve been struggling with this memory, I’ve found myself reverting back to childhood a bit. I’m teetering in a place between being a free, 30 year-old adult and being a scared child. As weird as it is, I feel like both at the same time.

I know I am an adult, but I am also living in fear of my mother. I check my bedroom door ten times to make sure it is locked before I go to bed. Why? Because I don’t want my mother coming in and hurting me. Adult me knows my mother isn’t even here, but the fear is still playing out actively in my head.

And as I’ve gotten ready for bed each night, I have created a protective cocoon of clothing: extra clothing under my pajamas, a sweatshirt with the hood over my head and closed tightly. Throw blankets wrapped around me like I am human burrito.Why? Because I need to protect myself from my mother. My mother, who is nowhere near me anymore. My  mother, who doesn’t even know where I am. But that knowledge doesn’t matter because I am living in a state of confusion, a mixed state of past and present that has become my reality.

I’m not sure what is worse: living in fear and not knowing why, or living in fear, totally aware of the irrationality of it all, but not being able to control it.

Flee, Part 2

“Are you protecting them or are you protecting you?”

“I don’t know. I don’t understand this.”

“You don’t need to protect them anymore.”

I know that; intellectually I know that. But I was still so afraid to say out loud what happened. We were trained not to tell anyone anything. She told us they wouldn’t understand. So I kept quiet. I never told. And even though she’s not here now, I’m still not telling. I’m still living in fear of a threat that is no longer valid.

I think I am protecting her. I am still protecting both of them. I can still hear her voice inside my head sometimes. Don’t tell. Don’t tell. Don’t tell.

“Look around. You are safe here. They are not here. No one can hurt you here.”

I knew where I was. But I was somewhere else in my mind. I was existing within two worlds at the same time: the world of now and the world of my childhood. It was as if I were standing on an invisible line, with one foot on either side: the past to my left, and the present to my right. I can see both worlds, but I can’t pick a side. So I stand there, existing in limbo.

“What was your mother doing?”

The pressure built up inside my head again. I could feel my insides shaking and I started to panic. Why is it so hard for me to tell? I want so badly just to let it out and I can’t. I can’t do it.

“Do we need to take a break?”

I wanted so badly to say no. I wanted to be strong. I wanted to fight through the chaos inside. But I knew in that moment that I couldn’t go on. I wanted to flee from my own body. I wanted to escape right then and there. But why? I was in a safe place. I was with a safe person. So why do I still want to run away?

I want to run away from the truth. I want everything to be okay. But it’s too late for that.

I told her yes. I didn’t acknowledge in that moment how powerful it was for me to admit that I needed a break. I never did that before.

My therapist asked what I had for breakfast. Nothing. She asked what I had for lunch. Nothing. She asked about coffee. I always have coffee before therapy, even if I don’t eat anything. I used to drink it black, but now I get it with cream and sugar for the added calories. It all tastes the same to me.

I’m in therapy now, talking about coffee. I was slowly crossing over the invisible line into the present, no longer teetering into the past. We talked about my school situation. We talked about the GRE, and how I cried over the phone because the person registering me could not understand me. But I wasn’t crying about the misunderstanding or about the GRE; I was crying because I couldn’t handle everything that was going on in my mind.

We talked about TV. I bought a TV back in February and have watched it twice since then. I don’t know why. She asked what kinds of television shows I like to watch. She mentioned reality shows. “I can’t watch them, my father watches them.” She mentioned another type. “I can’t watch them, either. He liked them, too.”

I have disconnected myself from anything that reminds me of my abusers. I told my therapist about the Poptart incident from the week before. I told her how I can’t wear headbands because my mother wore them, how I can’t eat certain candies because my mother ate them. I don’t want to be like her. I don’t want to be like my father, either.

“That doesn’t make you anything like them. You need to reclaim those things. You can eat a chocolate Poptart because you like to eat them. It doesn’t make you your mother.”

“It’s alright, I switched to peanut butter. My mother hates peanut butter. But I knew that wasn’t my therapist’s point. I’m still avoiding. I’m still restricting myself from things that I could enjoy just because those other people enjoyed them, too. It’s not fair.

By the time the coffee and Poptart conversation was done, we were nearing the end of session. It didn’t feel like all that time had passed. I was sitting there, still very much unresolved. I knew the memories were going to come back. I knew I failed again.

I want to stay here. I don’t want to flee anymore. Help me get through this. Help me stop this.

Flee, Part 1

I sat in the waiting room of my therapist’s office this afternoon, fighting the urge to get up and leave. I looked at the door, then looked at the clock, debating if I could dash out without running into her. I can’t leave. She’ll worry. I have to leave. I can’t do this today. I spent so much time debating with myself, that before I knew it, my therapist came out of her office and my option to flee was gone.

I was scared. I wanted to run away because I was scared of what was going to happen. I knew my therapist would know something was wrong. It doesn’t matter how many times I say “I’m okay.” My face always tells the truth, and today my face was telling the world that something was wrong.

Sure enough, my therapist knew I was not okay. She asked when it all started. I told her. I told her how I couldn’t stop crying. I told her I couldn’t sleep. I told her about the memories that were (are) not stopping. I told her I didn’t want to remember anymore. I couldn’t take anymore heartbreak.

My therapist talked about memories and what memory loops mean, and all the things I already knew. Therapy was a safe place to talk about it. I knew that. But I was still scared. I tried to process it anyway. I knew that hiding it and avoiding it was not working; that was obvious to me given how I’ve been the last few days.

He knew. He was there. I started crying. Uncontrollably. I felt the pain in my heart come back. My head was hurting in a weird sort of way, like a pressure was building up inside with no way to release it. And I just kept crying. I didn’t want it to be true. I wanted that little bit of hope I had been holding on to that my father was just the tiniest bit of a decent person. But that is shattered now. That hope is lost.

It was too much for me to accept. I started doubting everything. Maybe these memories aren’t real. Maybe I’ve just made this all up in my head. I knew in part that these memories were real, but I didn’t want to accept them. I wanted my hope back. I wanted my innocence back. I wanted my father back.

I’ve had memories before where he is there, but not really there. This was different. It was clear what was going on. There is no doubt in my mind. He knew. And he didn’t protect me. He didn’t help me. He helped her.

Why? I don’t understand. My therapist says not to focus on the why, not to stress myself out trying to understand people who cannot be understood. But I can’t help it. I don’t like it when I don’t understand something. I don’t understand my life. I don’t understand the people who raised me, although I’m not sure saying “raised” is really accurate at all.

I struggled to stay connected to the present. The difficulty of working through flashbacks and memories is realizing that you are in the here and now, and not back when the trauma happened. Sometimes I am afraid of reliving it, so I push it down and try to forget about it. For the record, that never works.

My therapist has to constantly remind me that I am safe there, that no one is going to hurt me. So why is it so hard for me still? I want to feel safe. I just want to feel safe for once in my life.