DID

No-pamax

~ KJ ~ 4 Comments

I am, once again, off medication.

I probably shouldn’t have started back in the first place. I’ve struggled with finding medications that were more beneficial than harmful. I’ve talked about my issues with psychotropic medications before in this post. I cannot take antidepressants because they cause an adverse reaction. I actually seem to function quite decently on no medication at all (and that’s not just me saying that – others agree).

My migraines were getting so bothersome that I agreed to give Topamax a try when my doctor suggested it back in March. I had been on Topamax before – last year to be exact – and had considerable side effects and ended up weaning off. But I was so desperate for relief, and my doctor was confident that Topamax would work for my migraines and would help me stop smoking – killing two birds with one stone.

It worked. My migraines significantly diminished, and after a week or two, I had no migraines at all. Headaches, yes, but they were tolerable in comparison to the migraines I had been experiencing for so long. I found relief.

Unfortunately, I also found a shitload of side effects. Gastrointestinal issues (I will spare you the details) just worsened as the dosage increased. While my cravings for cigarettes decreased (I actually managed to go 10 days without smoking), my cravings for everything else – including food – also decreased. The mere act of drinking water required a massive amount of effort, because anything that would go near my mouth would make me instantly sick.

Even so, I continued to take the Topamax. But then the scary side effects started to creep up. I would be having an okay day and suicidal thoughts would come out of nowhere. I didn’t put two and two together until the thoughts continued to get worse as my dosage continued to increase.

I’ve had similar reactions before, but that was when I was taking antidepressants. I knew Topamax was not an anti-depressant. Out of curiosity, I googled Topamax and suicide and came across countless others who had experienced the same side effects. I read at least a dozen accounts that were eerily similar to mine: being okay one minute, then having troubling – at times graphic – thoughts of suicide just moments later.

I knew then that maybe this medication was just not worth it for me. I really wanted it to work out, because my migraines were gone. But I also knew that I needed to be alive and functional, and the medication was sending me on a path in the opposite direction. I told my therapist what was going on. I told my close friends to watch out for the signs. And after two more weeks with no improvement, I started to wean off of the medication.

So now I am sans medication. My migraines are back, but I am treating them with OTC migraine medication for now. My mind is not as foggy. I feel more mentally balanced. My mood is more stabilized now that I am off of the medication (which is ironic, because Topamax is used off-label as a mood stabilizer). I feel more connected to reality and to living.

I am not advocating anyone going off of their medication. I have done it in the past under close guidance. I just happen to be one of the small percentage of people who experience adverse reactions/side effects from psychotropic medications.

I wish there was a pill I could take to make me better. Unfortunately, with trauma-based disorders like PTSD and DID, treatment relies more on therapy than on medication. That’s why I go to therapy a few times a week, every week. Healing happens from there, not from a pill.

Why Feeling Suicidal Isn’t Being Suicidal

~ KJ ~ 4 Comments

I want to share an article I came across a short time ago:

When You’re in the Gray Area of Being Suicidal

The author (Taylor Jones) does an excellent job of putting into words what so many of us experience on a regular basis: feeling suicidal but not wanting to die.

You can’t fault someone for having suicidal feelings. But there is a key difference between feeling suicidal and being suicidal. When you are suicidal and want to die, you make a plan, and may even go so far as to put that plan into action.

When you are feeling suicidal, it remains a feeling. You don’t act on it. You may even forget that it’s there for a while before it creeps up again. You go about living your life because you really don’t want to die, but you can’t help what you’re feeling.

If I wanted to die, I would be dead. I would not be sitting at my computer right now, typing up this blog post. I could have overdosed on something. I could have jumped in front of a train or a bus. But I have not. Because I don’t want to die.

If I wanted to die, I would have just stayed in home prison. My mother would have killed me soon enough. Instead, I knew that there was life outside of those walls, a life that was probably worth living.

If I wanted to die, I wouldn’t be dragging my ass to work every day to earn a paycheck. I wouldn’t even be getting out of bed. What would be the point?

If I wanted to die, I wouldn’t be spending the majority of the money I earn paying for my therapy sessions each week. In fact, I wouldn’t even bother going to therapy. There would be no point. Instead, I have continued to go to therapy every few days for the last 10 months.

And if I was in danger, I know how to get help. I admitted myself to the hospital all of those times, and even though I probably didn’t need to be in the hospital, I knew in my heart it was better for me to be there (especially while I was still living with my abusers).

So yes, I often feel suicidal, but no, I’m not suicidal. It’s not the same thing.

I live to live

~ KJ ~ 6 Comments

No matter how shitty (or great) I feel, I wake up at 4:30 every morning, take a shower, get dressed, and go to work. I could have slept two hours; I could have slept eight hours. It doesn’t matter. I continue to do it because I need to, and because I want to.

When I fell in the street at the end of last August, I picked myself back up, wiped the blood off of my hands and knees, walked to the bus stop and went to work. I didn’t stop. I went to the hospital afterwards, where I found out I had fractured my right foot (and sprained my left knee). Even then, in a cast and crutches, I woke up at 4:00 the next morning, took a shower, got dressed, and hobbled my way to the bus stop to get to work.

When I neared the end of my undergraduate career last August, I put my heart and soul into my work. Despite moving out, being hospitalized, working, and being officially diagnosed with DID within the course of a month, I managed to complete a research project and thesis and receive a near-perfect score (99). I graduated with top honors, despite the chaos going on around me.

When I ended up in the hospital in the beginning of August, I worked my ass off to get out. Right after I was released, I walked right to my therapist’s office and had a session. I went home, unpacked my things, and worked on my thesis, a chapter of which had then been overdue. Then the next morning, I woke up at 4:30, took a shower, got dressed, and started my first day at work, less than 24 hours after being released from the hospital.

When I ran away from home prison on July 10th, 2015, I did so against impossible odds. I managed to hide money away in separate online bank accounts that my mother didn’t know about. I managed to find a place far enough away to keep me safe, but close enough to a competent therapist and to a school where I could fulfill my dream of being a counselor. I managed to free myself and physically leave through the front door of the apartment, the same door that my mother slept just feet away from every night, as if she were a prison guard on duty. I could have been hurt. But I escaped. Despite everything, I found freedom.

I have consistently shown that I do not give up. Life seems to knock me down quite a bit. Sometimes it really gets to me, but I have never stopped living. Even in the darkest times, I continue to live.

I can’t change some of my circumstances.

I can’t give myself a biological family; that’s gone forever. But I have a family that consists of my friends from the new life I have built here.

I can’t grow money on trees. But I can keep working and find ways to survive until I find success someday.

I can’t cure my DID or take a pill and forget everything that happened to me. But I can keep going to therapy, even if I have to go for the rest of my life.

I may not be the best at life. Considering where and what I came from, I think I am doing a damn good job. I am living. Despite everything, I am living.

And I have died so many times, but I am still alive.

I am a work in progress, just like anyone else.

Significance

~ KJ ~ 2 Comments

Have you ever wondered why certain dates are so significant?

I mean, most people know why a date is special. Why they feel a certain way on a certain day. Maybe it’s someone’s birthday. Maybe it’s the anniversary of someone’s death. Maybe it was the date that something particularly impactful happened to you so many years ago, enough that you still feel it years later.

But what do you do when you have no idea why a certain date is so significant?

I have no memories of April 25th. I don’t understand why it is important to me in any way, or why it would matter. It’s nobody’s birthday. It’s nobody’s death anniversary. I don’t remember anything happening to me on that date.

Yet three times over the years of my life, on April 25th, I have tried to kill myself (and failed, obviously).

Is that coincidence? Possibly. But what are the chances?

I’ve tried so hard to remember some type of significance for that date. What the hell happened to me? Something had to have happened. But will I ever remember anything? Do I even want to remember?

It’s funny how trauma and DID affects the brain. Clearly, a part remembers something. And here I am, not remembering shit. And it’s frustrating. And terrifying. And I hate it.

Why can’t I feel anything?

~ KJ ~ 1 Comment

I had therapy this morning.

It started out okay. But I knew my therapist wanted to talk about my parts, a topic we haven’t been able to delve into much because my life has been a clusterfuck lately. Talking about parts is not the most comfortable thing for me, because parts come out and I hear things that I am sometimes not quite ready to deal with, or things I don’t want to deal with.

There has been an issue with some of my parts and therapy. Parts don’t want other parts talking. One part doesn’t want anyone (including me) talking about a particular event that several of us happen to share experience and memory of. It’s so complicated. And the problem is that this particular event was so traumatic even for me, that it is very prevalent in my life and I need to talk about it. But every time it comes up, it causes chaos on the inside.

I tried to explain to my therapist a little bit of what was going on without going into specifics, because I didn’t want to trigger myself into a switch. That didn’t work for too long, because I realized I was thinking about the event in question and it brought up feelings and feelings get you in trouble and off I went.

When you come out of dissociation, you ground yourself. You try to engage your senses. My therapist always tells me to put my feet on the floor. I’m able to bounce back pretty quickly at this point, without going through the entire process. She told me to feel the water bottle I had near me, and asked me what the temperature of the water was. I held the bottle in the palm of my hand, but I couldn’t really feel it. I tried to close off everything else going on around me and focus on just the bottle and my hand. I still couldn’t feel it. I think my therapist sensed my frustration. She asked me what was wrong. I told her, “I don’t know, I can’t feel the water.”

She got up from her chair, took the bottle from my hand, felt it, held it out in her hand, then held out her other hand towards me.

“Touch the bottle and my hand and tell me which is warmer.”

I grabbed the bottom of the bottle with my left hand, and reached out and held my right hand against her palm. I tried, and I still could not feel anything. I was frustrated. My therapist played it off like it was okay. She told me she thought her hand was warmer, and went and sat back down in her chair. I sat back and started to cry.

“What’s going on?” she asked.

I was hesitant to answer at first. I just wanted to tell her I was okay. My go-to answer. But she knew by my expression and my tears that I was not okay.

“Why can’t I feel anything?”

She asked me if I really wanted to know her thoughts. I already knew. I developed parts that shut off feelings because that is what they needed to do in order to survive. They believed that feelings were wrong. They believed that feelings resulted in pain and hurt (because they did). How horrible it must be to still be stuck in a world where you believe you cannot feel. The sadness I experience with not being able to feel the water, or my therapist’s hand…that doesn’t come anywhere close to what my parts (and I) have experienced in childhood.

While I was crying over not being able to feel a bottle of water, I was actually crying over a whole lot more.

Doctor’s Appointment

~ KJ ~ 2 Comments

I had my doctor’s appointment on Monday.

It was full of a lot of disappointment.

I am proud of myself for sticking through it and not backing out, despite terrible anxiety.

I sat in the waiting room filling out endless paperwork. I’m pretty sure my legs were shaking the entire time. I considered walking out twice, but I couldn’t.

I finally got in the room and the doctor came in. She seemed a nice. A little upbeat. I’m weary of upbeat people. Perhaps she drank too much coffee. She looked over my paperwork, then focused on my lengthy list of hospitalizations. Panic attacks, psychiatric, psychiatric, malnutrition, psychiatric, psychiatric, and then at least six hospitalizations for pneumonia that I could remember in the last decade. Then she noticed the name of the hospital and asked me where it was.

“Oh, I delivered babies at that hospital. I used to live there!”

My heart sank a little. Of the hundreds of cities and towns in this state, this doctor happened to live in my hometown, just a few minutes away from where I used to live. It’s not even a major city, which makes it even more weird. A part of me instantly put a guard up. Anyone from back home is a possible threat in my mind, even though the actual likelihood that they are is slim to none. Tell my brain that.

She did a mental health/depression screening. I failed. I should have known better. Because then, of course, she wanted to put me on psych meds. No thanks. She named several antidepressants that her patients had shown success on. That’s great. Except a) I don’t have clinical depression and b) I can’t take anti-depressants. I am part of the small percentage of people who have reverse reactions to SSRIs and SNRIs and end up more depressed and suicidal. There are no medications for DID. I didn’t come here for psych meds. I started to get frustrated and lost hope in the rest of the appointment.

Then she suggested a medication for my migraines, and said it would also help me stop smoking. I recognized the name as a medication I had taken before and had to stop taking because I couldn’t handle the nausea and complete loss of appetite. But she was a little insistent, even after I subtly mentioned a few times that eating enough is already a problem for me. But I’m fat, so most doctors don’t see past that and assume I could benefit from a loss in appetite. They don’t realize that, just two years ago, I weighed 160 pounds more than I do now. I just gave in and let her write the prescription, telling myself I could decide later on if I wanted to take it. Then I realized that her dosage is 4X the dose I was taking when I stopped taking it some time ago. So I’m certain taking this medication will not go over well.

She was especially concerned with my respiratory problems. I have a history of asthma, chronic pneumonia, and respiratory failure. I smoke. I have a family history of heart disease. She wanted an EKG, but by the end of the appointment I just couldn’t do it. She listened to my lungs. I hate taking deep breaths, because I can hear and feel the air struggling to get out of my lungs when I exhale. It is not a good sound. It is not a good feeling. This was no different.

She tried to explain, using her hands, what was happening to my lungs. She mentioned COPD – and this wasn’t the first time I had heard that. My long history of respiratory problems and consistent pattern of breathing difficulties had been pushing me towards a COPD diagnosis, but no doctors had ever made it official and never made it a priority. She prescribed me a few different inhalers, which she said would treat both asthma and COPD. And in my mind, it hadn’t yet clicked that she was insinuating that I had COPD. I thought she was just saying it was a risk to try to get me to stop smoking.

But then, the next day, I checked my medical record online to make sure all of my information went through, and right there, towards the top of my chart, was chronic obstructive pulmonary disease, unspecified – Active – Diagnosis Date 03212016. For some reason, in that moment, it hit me. This diagnosis was on my medical record. What the fuck.

I was angry. I was enraged. Not at myself. But AT THE DOCTOR. How could she do this to me? I am 30 years old. COPD is for old people. I am not old. I do not have COPD. And being the irrational person that I am sometimes, I responded by going to the store and buying MORE cigarettes – because in my mind, if I already have the diagnosis, why the fuck should I care now? It’s just been a whirlwind of emotions about this that I still haven’t processed yet.

Going back to the appointment, she took a lot of blood. Probably more than I’ve ever had taken before. She is testing my vitamin levels, thyroid, blood titers, all the usual shit and then some. And that was it. There was so much focus on my mental health and my breathing, issues that I thought I had under control, and nothing about my constant pain. I was disappointed. I have to go back and see her next month, but I just don’t know if it’s worth the travel to get there. It did not go as we (me and my therapist) had hoped. I will talk to my therapist more about it in our session tomorrow, but I just don’t know. I need to take some time and think it over. As I smoke more cigarettes. With my new inhalers.

I’m sad that so many doctors don’t consider the past, only the present. Of course I have trouble sleeping and hate life sometimes. If you knew what I experienced the last 30 years, my present makes sense. Yes, I’m overweight now. But I lost a tremendous amount of weight in a relatively short amount of time and got sick from it. So while yes, I need to lose weight, I don’t need to promote my eating disorder to do so.

I know that some of my health issues are my own fault. Smoking does not help my cause. But I also had severe respiratory problems well before I started smoking. I started because at that point, I didn’t care. Part of me still doesn’t. But still. I’m only fucking 30. Where the fuck did I go wrong in life?

Meanwhile, the shittiest fucking people alive are still living. My mother will probably outlive me. My father has had several heart attacks, a stroke, and congestive heart failure for years and he is STILL hanging on. What the fuck.

Life is a cruel joke sometimes.

My birthday, a name change, and various life events of the past few weeks

~ KJ ~ 4 Comments

I took a short hiatus from blogging. There has been a lot going on in my life the last week or two and I just needed to refocus. Things should be returning to my normal soon.

I turned 30 last Sunday. I knew it was going to be a rough time for me, just being away from everyone (the good people, not my family). It was also the 10th anniversary of my friend’s death, which always brings up feelings for me.

Thirty was (is) a significant age for me. For years, I promised myself that if I hadn’t gotten out by the day I turned 30, I was going to end my life. I went through most of my late 20s waiting for that day. I had very little hope that my life would ever change; I just knew that 30 years was enough for me and that was going to be it.

But that’s not how turning 30 played out. I spent my 30th birthday as a free person. I may not have had a party or celebrated very much, but I was free. It was the best gift I could have ever gotten.

I did have a few small celebrations. I had a group therapy session two weeks prior to my birthday. During the break, the therapist walked in with a cake, candles lit and everything. I was completely surprised and overwhelmed with emotions. I got a beautiful card that everyone signed, and a butterfly nightlight (which is perfect). At one point, I had to hide my face in my hoodie because I started crying and didn’t want anyone to see me. I’m starting to cry now just writing about it.

For the first time ever, I blew out the candles on my birthday cake and made a wish that didn’t involve anyone’s death. In the years that I can remember, my wish was to die. I wished someone would kill me. A few times, I wished my mother would die; then I could be free. But I didn’t have to make those wishes anymore. I didn’t have to die.

The experience reinforced for me that I have support. Even though a good chunk of that support is coming from my therapists, it’s still support. It is the support that has allowed me to escape and to begin to heal. It is the support that brings me together with others who understand. It’s the support I need to glue my pieces back together.

I had to work on my birthday. That was okay with me, because I didn’t want to stay home and be miserable. My coworker bought in an ice cream cake. At 9 o’clock in the morning, our team gathered and sang happy birthday to me, and we all devoured the cake (with the excuse that ice cream is good for energy and increases work productivity, yes). This was my work family. People that I care for, and that care for me. It didn’t matter what happened the rest of the day.

As a gift to myself, and something I promised myself I would do during the new year, I decided to proceed with legally changing my name. A few people have been referring to me as Kyra for some time now, but I haven’t bothered explaining to most people why I want to change my name, so I let them use my birth name. I hate my birth name, though. I don’t think I should have to keep a name that was given to me by the very people that destroyed me. They don’t deserve that.

While I’ve been sure my first name will be Kyra, I’ve been back and forth about a middle and last name. For my last name, I wanted something with meaning, but not complicated either (my legal last name is a mouthful). I was open for suggestions, and received quite the array of responses. Finally, one suggestion sat well with me. It wasn’t too complicated of a name, and translated to courage, which is something I’d like to think I have.

For my middle name, I actually chose a name some time back, but didn’t tell anyone because I thought that people would be very judgmental about it. I “tried on” other middle names, but I didn’t like them the way I liked my original choice. Once I had figured out my last name, I decided to open up about the middle name I wanted – Jack. And everyone was supportive of it (at least to my face). I feel like it fits me.

I started filing the legal papers, but it’s time consuming and expensive, so the whole process will likely take months. For now, I am answering to any name someone happens to throw at me. I hope that once my name is changed legally, people will be receptive to calling me by my new legal name.

I’ve been a little overwhelmed with schoolwork. This week is Spring Break, so I am trying to catch up with the reading I am behind in. I also have a presentation due in two weeks, a paper due Sunday, a midterm due next week, and another paper due next week. Normally I use the weekends to get everything done, but these next few weeks are going to be hectic. This coming Sunday, I have to work from 6 AM to midnight, so there won’t be time for me to write my paper then (because I am definitely a procrastinator and do my best work in the hours before something is due). I really need to work on planning ahead.

I have a doctor’s appointment coming up next Monday. It has brought up a lot of anxiety. My therapist has been working with me the last few weeks in preparation, but I still feel scared about going. I don’t want to panic and shut down. I know I need to go, because my health is shit, but part of me just wants to avoid all the trouble, physically and mentally, that this whole ordeal is going to involve.

Perhaps it’s a good thing, but I’ve been asleep more than I’ve been awake. The other day I slept at least 16 hours within a 24-hour time span. It’s a welcome change in a way, since I had been suffering from insomnia so badly in the weeks before that I had slept just five hours over the course of three days. Maybe my body is finally catching up. Maybe I’m getting sick. Maybe my nutrition has gone to shit. Who knows. It’s probably better that I’ve slept through most of this past week, anyway. I just wish I could do my schoolwork in my sleep. Then I wouldn’t be so behind right now.

Oh yea, this past weekend marked 8 months of freedom.

Life is progressing a little too quickly for me.

 

239 Days

~ KJ ~ 2 Comments

Today is the 239th day of my freedom. 34 weeks. Nearly 8 months. I’m still alive and kicking (although sometimes, I’m kicking myself).

For anyone that assumes that life is easy once you escape a trauma…it’s not. Thanks to PTSD, I oftentimes feel like I am reliving my past over and over again. I still get panic attacks. I still have parts that think we are living back home, and are scared of our mother. I still, in some sick way, miss being home.

It’s hard for people to understand why I do the things I do. In some ways, I am still a scared child stuck in an adult body. I lock the bathroom door because I feel safe that way. I lock my bedroom door at night for the same reason. I could live in the safest neighborhood on the planet, and I would still lock the door. I sometimes hide in my closet. No one can see me in there. I still wear 3-4 shirts and three pairs of underwear (simultaneously) every day. It is a habit I have had since I was young and even though I know I am no longer in danger, it still helps me feel protected. As an adult I should know better, but it’s not that simple.

I’m exhausted. I sleep for two hours and twenty minutes each night. Then I wake up, completely disoriented and not even sure WHY I am awake. If I’m lucky, I’ll doze off a couple of times before I have to wake up for work. My exhaustion is evident. My therapist even asked if I had considered taking my Ambien again. I realized at that point it must be bad, as we both believe that I have been better sans medication (in general).

Half the time, I’m battling a migraine. My feet are causing me excruciating pain. I go to the bathroom at work sometimes just to get a break for a few minutes. I hibernate in my room at night because I can’t physically handle going up and down the stairs.

A couple of weeks ago, my therapist called countless doctors, trying to find someone experienced in dealing with trauma patients. I give her a lot of credit. She worked her ass off trying to get me care, because we both know I need it, even though I deny it a lot of the time. Fortunately, she found a doctor who is experienced and is willing to take me on as a patient. The doctor is not even in my county, but I am sort of at a desperation point. My therapist has already filled her in on some of my problems and she seemed eager to help. I have an appointment on March 21st and I’m scared as fuck. My therapist keeps telling me that I deserve not to be in pain; but pain is something I’ve known my entire life.

Me and denial have been best friends lately. I still at times find myself denying my DID. My therapist talks about my parts and I go on as if they didn’t exist. I told my therapist in our session yesterday that I just wanted to be normal. I want to have a normal childhood. I want to have a normal life. I want to feel normal. I don’t want DID.

If that wasn’t bad enough, I am denying my past. Memories come up and I discredit them. That never happened. My mother would never do that. My therapist brought up a memory that came up in our session on Monday and I told her that it wasn’t true. I denied it. I didn’t want to acknowledge something so sick, something so vile. Even though on some level, nothing my mother did, does, or will do surprises me. But it’s just so much easier to deny it. Let’s just pretend it didn’t happen. Let’s just pretend I had a happy life. Please.

But we all know that never works out that way.

Denying my memories will only make them come to the surface more. Denying my parts will only make them louder in vying for attention.

But yet here I am, on day 239, still denying most of my life.