Nothing like a little Sunday morning dissociation

I couldn’t really think of a title that appropriately summed up my Sunday.  I found it a little humorous, and honestly I have to laugh.  My life is so chaotic, yet I wouldn’t have it any other way.  As much as I am dealing with, I’m getting through it.  I’m learning more about myself, and about my illness every day.

It was 3:30-3:40 in the morning on Sunday when I was startled awake by someone pounding on the door.  I didn’t know who it was.  I only knew what time it was because I immediately looked at my phone.  Then banging got louder.  I went into panic mode, thinking either my mother finally found me, or she sent the police to come get me (she regularly threatened to call the police on me – so while not logical, it’s something that is ingrained in my head).  I don’t remember what happened after that.  What I can tell you is that somehow, I ended up in my closet, where I woke up/came back to reality/whatever you want to call it holding my blanket and my arms covered in scratches.  It was almost an hour and a half later; I heard a commotion outside.  I figured out who it was; thankfully, he was not my mother or the police.  I still felt unsafe and uneasy.  I didn’t find out until later that night that my roommate was not even home when the door-banging occurred; I was completely alone.  Thankfully some part of me had the sense to hide in the closet.

That got me thinking about what made that part of me hide in the closet.  I remember that my mother barricaded our closet doors so that we could not use them.  I always thought that was strange.  Who has closets and blocks them off completely?  Did I used to hide in there and that’s why she closed them off?  I wonder what it would have been like to have a closet.  Would I have been able to hide from her?  I’m sure she would have found me.  She always did.  Like a monster with eyes and ears all around her head, she knew where I was, what I said, what I did.  A closet wouldn’t have protected me.  That’s just silly.

Then again, it makes sense I would hide in a closet.  I still do a lot of things to protect myself that don’t really make much logical sense.  I’ve been doing them since childhood that they’ve become a part of my regular.  I always wear at least two pairs of underwear, sometimes even three pairs.  Does it make sense?  No.  That extra pair isn’t going to protect me.  But as a child, I’m sure I thought it was going to help.  I also always wear multiple layers of clothing, even in the summer, even if it makes me sweat.  Extra clothing makes me feel more protected and less vulnerable.  Maybe she won’t make me undress if it’s too much to take off.  Most embarrassing of all is my habit of stuffing myself with toilet paper.  I remember doing it as young as 8.  I thought if I could just block that whole area with toilet paper, she wouldn’t be able to touch me anymore; she wouldn’t be able to hurt me.  I created a literal barrier between her and my genitals.  It was so uncomfortable, but I wanted her to stop.  Of course it didn’t work.  She caught on.  I still did it, but not every day; only when I was feeling especially vulnerable.  Even in my adolescence and adulthood, when I had (and have) and ability to say no, I still find myself doing the same thing when I am feeling especially vulnerable or re-traumatized in some way.

As far as I’ve come, I am still very much a traumatized child living inside a traumatized adult.

Progressing in therapy

I sat here debating whether “progressing” was an appropriate word to describe my experience in therapy.  I’m still not 100% sure, but I’m going to go with it anyway.

I look forward to therapy, while at the same time have some fear about what might happen.  Sometimes our sessions are an hour.  Sometimes they are a couple of hours.  You can never really tell how it will end up.  I’m still going twice a week; that won’t change any time soon.  I also e-mail my therapist between sessions to check in; sometimes she even gives me homework (I’m making a face right now just thinking about it).  But it works for us.

My therapist is amazing.  I’m pretty sure she gets me.  Sometimes she doesn’t know whether I am being genuine or sarcastic – I consider that my talent (with anyone, not just her).  But she’s really smart and knows her shit, even when it’s random shit.  I e-mailed her last night to tell her that I had eaten a potato (it had been three days since I had eaten) and she e-mailed me back this morning comparing my choice of eating a potato to Carol Rogers’ description of human actualization, in which he compared the process to that of a potato, which will strive to grow in the most unfavorable, sunless, earthless conditions; with nourishment and sunlight, in the right environment, it can become what it is meant to be.  While some people might think that was weird, I quite adore Carl Rogers and I am a psychology nerd, so I enjoy random facts like that.  It made my day.  She’s also very in tune with my needs and knows my limits.  And she gives me a hug after every session and tells me all the positive things I’m doing, even though I don’t believe all of them.

Therapy has been a little slow because I’ve had so many issues come up that we haven’t had much time to begin to process the MDSA.  Yesterday was the first time we actually started.  It wasn’t much; we watched the first part of a documentary (less than 10 minutes) and then stopped it to discuss.  Before we watched it, my therapist prepared me for how we should deal with whatever would happen.  If I needed to take a break, to tell her I needed a break.  Then she asked me if I were to dissociate, did I want her to bring me back right away or could she keep me in that state?  My mind just went blank.  I’ve spent years learning about DID and dissociative disorders.  I never once thought I would have to be making these decisions for myself.  Everything is different when it’s something you experience.

The documentary part wasn’t anything tremendously difficult.  What stood out to me the most was one of the women in the documentary saying how her mother made her out to be the crazy one.  That was just…exactly my life.  Then talking about that progressed into my use of the word crazy, and how my mother liked to use that word to describe me to everybody…and here I was using it myself.  It doesn’t make a lot of sense, does it?

I’m not entirely clear on how the rest of therapy went.  I remember my financial issues being brought up again.  I remember mentioning how I didn’t want to turn into my parents, depending on others for support.  I really don’t remember much else.  I came back from a long dissociation wrapped in a blanket, holding a stuffed lion, with my arm red and bleeding.  I don’t even know how I ended up there, or what happened while I was out.  She just told me I was hurting myself.  All I could do was apologize.  Why can’t I have happy dissociations that are all about sunshine and rainbows instead of bouts of self-destruction?  It also sucks that I can’t remember.  I just want to remember.  My therapist insists that I’m making progress and taking steps forward.  I just don’t know.  I see dissociating as a failure.  I guess I got by before because I wasn’t so acutely aware of it as I am now because now I have someone pointing it out.

I was feeling a little down about what happened in therapy.  I feel like we hugged forever because I didn’t want to let go.  As I was writing her the check, I asked what the date was (I am horrible about keeping track of the date).  When she told me, I remembered that the date was also my parents’ anniversary.  Without thinking, I said “Oh, that’s my parents’ anniversary.  I hope they die in a fire.”  I realized what came out of my mouth, but before I could feel bad about it, my therapist actually validated what I said.  She didn’t tell me what a horrible thing it was to think or say; she sort of, indirectly, agreed.  What a great feeling that was.  For once, I didn’t feel bad about wanting those evil people to die.  Unfortunately, I don’t think they died in a fire.  Yet.  There’s still time.

When I got home last night and melted into my bed, I looked at my arm where I had scratched myself hours before.  Then I realized something.  This was something I had done before.  I remember as a child, I would scratch my skin raw.  I had to go to the doctor to make sure it wasn’t a contagious disease; it wasn’t contagious…it wasn’t an obvious allergy…the doctors weren’t really sure what caused it.  It happened regularly throughout my childhood and even as a teenager and occasionally as an adult.  Sometimes I would wake up with my skin like that, so I assumed I would scratch in my sleep.  No one ever really made an issue out of it.  And now I’m sitting here wondering if there is a connection.  Could I have dissociated that young?  And why the hell would I scratch my skin off?  What is wrong with me?

Why am I so unstable?

I accomplished something today.

Then it all went downhill from there.

I was sitting in a coffee shop before my therapy appointment.  I looked up from the table and noticed a vehicle parked right outside.  The vehicle was the exact same make and model of my family’s vehicle, the same color, everything.  I immediately went into panic mode, put my head down and hid behind my bag.  I closed my eyes, as if that would protect me from anyone seeing who I really was.  I started talking to myself, trying to rationalize with my logical half that the likelihood that this was in fact my family was just too small.  But my panic wouldn’t have it.

I sat there for five minutes struggling to breathe, wanting to crawl inside myself and hide.  Continuing the conversation with myself, I eventually arrived at the logical conclusion to look at the license plate.  I peeked out from my self-made protective cocoon to make out the last half of the plate, and realized that it was not the same vehicle.  Then I started to calm myself down.  I brought myself back from an episode of panic.  It may have taken some time, but I did it.

Then I went to therapy.  I was still a little shaken up from the prior incident and I told her that, but I also told her how I managed to overcome what could have turned into a disaster.  Then I talked about my incident on the bus the other day.  Then I’m not sure where the conversation went because I don’t remember much after that.

Apparently I dissociated.  I really wish I could know when the hell it’s going to happen.  I really wish I could know what happens.  I came back to my therapist sitting next to me, holding my hands and asking if I was me.  Of course I was me, who else would I be?  Then I asked her what happened.  She asked me if I remembered anything.  I didn’t.  My memory sucks in general.  I don’t even remember what I typed at the beginning of this post.  Then she told me what happened.  How the tone in my voice changed.  How she had to hold my hands down because I kept trying to hurt myself.  How I resisted her holding me.  There was clearly an angry part of me that decided to show up today.  I wish it didn’t.  Now all I feel is embarrassment over how I acted.  Part of me doesn’t even want to go back to therapy.  Then part of me is wondering what else I have done to people and I don’t even remember doing it.

There’s no more room for doubts now.  My therapist began asking about how I viewed my parts, if I had named them, etc.  I turned my head away and tried to hold back tears.  She asked me what was going through my head, and all I could say was “I don’t want to be crazy.”  I think she may forbid me from using that “c” word from now on.  I use it a lot.  She said a lot of reassuring things, but it was difficult for me to take.  She told these parts are what helped me survive. They helped keep me alive. I don’t know. This whole diagnosis is hard for me to accept.  I need time.

Resilience

Some would say it’s a contradiction for someone with PTSD to refer to themselves as resilient, since PTSD itself contradicts healthy adaptation to stress.  But you know what, I am resilient.  I don’t care who agrees or disagrees with me.  It doesn’t matter.  I’ve made up my mind.

With less than a day of being released from the hospital, I started my job.  I called them as soon as a got out of the hospital to find out if I even still had a job.  Luckily my roommate called them while I was in the hospital so they were somewhat aware (though they do not know the circumstances).  I woke up at 4:45 in the morning so I would be able to shower and get ready in time to make it to the 6:00 bus.  I was tired and in pain, but I managed.  There were a couple of times when I just had to go to the bathroom to decompress for a few minutes.  I also lost myself for I don’t know how long.  When I came back to reality, it took me a few seconds to even realize where I was and what I was doing.  I don’t think anyone noticed, thankfully.  It’s not something I wanted to happen on the first day, though.  I’m so scared of someone not understanding what’s going on.  Why can’t I just be normal and not dissociate and not have flashbacks and not have breakdowns?

Regardless of all that, you know what?  I still went to work.  I functioned like a normal human being.  I would bet my savings that a good portion of the other patients that were discharged either went right back to drugs or right back to another hospital (most of them admitted that they would).  I’m not about that life.  I want to function.  I’m fighting my hardest to be normal despite all this bullshit I have to deal with.  How is that not being resilient?

Even in childhood, I managed to adapt quite well despite everything that was going on.  I received excellent grades.  I rarely got into trouble (except the rare instances when I was tremendously bored out of my mind).  I wasn’t a complete social outcast, though I was definitely socially inept.  Perhaps being resilient hurt me in a way, because no one suspects anything bad is going on when a child is acting relatively normal.  Maybe if I did act out, someone would have noticed something was wrong.  Resiliency seems to have been a double-edged sword for me.  While it got me through to adulthood alive, it also quite possibly prolonged the abuse and trauma I experienced for so long.  But I can’t do anything about that now.

I know a lot of people think I am weak for not being able to handle myself all of the time.  My strengths far outweigh my moments of weakness.  Maybe that is my fault for not talking as much about my strengths as I do about my faults.  I believe people can learn more from me if I talk about the things that so many others don’t want to talk about.  No matter what people say, no matter what people think…I am strong.  I am resilient.  I am me.

Giving crazy a name

I’m a very analytical person.  I like when things have names and definitions and concepts I can understand.  One of the reasons I went into psychology was so I could put a name on my mother’s type of crazy.  I wanted to know why.  I wanted to know what exactly was wrong with her.  There has to be something.  People don’t just act like that for no reason.  I needed an explanation.

I have since realized that my mother’s crazy is not diagnosable, or should I say, not limited to a single diagnosis.  My mother exhibits the signs of narcissistic, histrionic, and borderline personality disorders.  She’s also paranoid and likely has a mood disorder of some sort.  But you know what?  Knowing that doesn’t make me feel any better.  Having a mental illness doesn’t excuse you from being an abuser.  Hell, it doesn’t even excuse you from being asshole (that’s you, Dad).  In my early 20s, I struggled a lot with placing blame.  I so badly wanted to hate my mother for what she did, but then part of me thought, “what if she’s mentally ill?”  I was just trying to find an excuse for all the shit she did and was still doing.  Eventually, after several years, I realized all of that didn’t matter.  My mother did what she did because of who she is as a person, not because of some illness.  She had a choice.

Despite not caring about my mother’s diagnosis, I still so badly want to know what’s wrong with me.  Will it make a difference?  I don’t know.  I would like to think that it would.  A diagnosis provides a sense of direction, a method of treatment, an explanation of symptoms.  I have yet to have that.  It’s quite possible that my desire for a diagnosis, a name for my crazy, has been strengthened by my years of experience with different diagnoses.  I never really had a concrete answer.

My first diagnosis was bipolar II at the age of 15.  My first therapist worked with a psychiatrist who officially diagnosed me and started me on a mood stabilizer.  I didn’t really understand the diagnosis, even more so now that I am older.  My mood changes were nothing more than what is typically experienced by a teenager.  My issues were much deeper than that.  After more therapy, my diagnosis was changed to bipolar I with psychotic features.  My therapist believed there were times in which I was out of touch with reality; I did things I didn’t remember doing and acted like a different person, which she attributed to psychosis.  I now believe that those instances were actually times I had dissociated, not psychotic episodes.  Back then, I had no idea what dissociation was, and apparently neither did my therapist.

When I returned to therapy a few years later, my therapist diagnosed me with social anxiety.  I think he mistook my fear of talking with him (and others) as social anxiety when the real reason was because I was conditioned not to speak by my mother.  I don’t blame him for that bad diagnosis; you can’t diagnosis someone accurately if you don’t get the full picture.

Many years later, when I scheduled an appointment to see my primary care physician, I was diagnosed with depression and anxiety.  Generally, I don’t condone primary care physicians diagnosing psychological disorders because their training is just not adequate in most cases.  But I was desperate at the time and could not manage to see a psychiatrist or psychologist, so I did the only thing I could.  I wasn’t looking for a diagnosis; I was just looking for relief.

After my first hospitalization, I was diagnosed with post-traumatic stress disorder and depression with suicidal ideation.  The PTSD diagnosis made sense, as I had experienced some debilitating flashbacks as well as other common symptoms (irritability, trouble sleeping, and hypervigilence).  The depression diagnosis I had no strong feelings about; it just seemed like something they labelled on most people.  My diagnoses were relatively similar after  my second hospitalization (which I would hope so, seeing as though it was less than two weeks later).  The only difference was that they added “chronic” to my depression diagnosis.

When I started mandated therapy shortly after my second hospitalization, my therapist was required to make a diagnosis to report to the insurance company.  After two hours of intake and two subsequent one-hour sessions, she completely ignored the PTSD diagnosis and any related anxiety and diagnosed me with depression secondary to asthma.  This diagnosis was laughable.  I was not depressed because of my asthma.  Asthma was the least of my problems.  And it wasn’t like she was unaware of my history.  She was sent all of my information from the hospital.  She was clueless.  So clueless.  She even had the nerve to tell me she didn’t think I had anxiety at all.  Anxiety was probably the only thing I was sure I had in some form or another.  She was such an idiot.

Around the same time, my PCP diagnosed me with ADHD.  I was having trouble keeping attention, focusing on anything…hell, sitting still was difficult.  I always had problems, but they seemed to be magnified in those last few months.  It was never an issue before because I managed to function quite well academically as a child.  It could have very well been all of the medications I was on that made it worse, or even just my ever-increasing stress levels.  Who really knows.

When I was hospitalized for a third time in February, the ADHD diagnosis was dropped by the psychiatric nurse.  Instead, I was diagnosed with generalized anxiety disorder, chronic depression, and borderline personality disorder.  The BPD diagnosis was shocking to me.  I had extensive knowledge about the disorder from my psychology studies, and didn’t fit most of the criteria for diagnosis.  I believe they made the diagnosis based on my self-injury. Many professionals automatically associate self-injury with BPD, even though it is also present in order disorders.  I didn’t want that label on me.  I also knew, through my studies, that many professionals did not want to work with someone with BPD.  When I told my therapist about the diagnosis, she seemed to agree with my disapproval of it.  It was comforting to at least know that someone was on my side and I wasn’t completely unaware of my own mental state.

As of right now, I don’t have a diagnosis.  I have chosen to disregard all of my previous diagnoses because I don’t feel confident in any of the people who diagnosed me.  I hope that eventually, in my current therapy work, I can be diagnosed with something…anything.  At least this time, my therapist is taking her time and learning as much as she can about me and my history.  I trust in her knowledge and experience more than anyone else.  I just want to know that I’m not completely crazy.  I need a name for what I’m experiencing.  I need an explanation.