DID

Nothing like a little Sunday morning dissociation

~ KJ ~ 5 Comments

I couldn’t really think of a title that appropriately summed up my Sunday.  I found it a little humorous, and honestly I have to laugh.  My life is so chaotic, yet I wouldn’t have it any other way.  As much as I am dealing with, I’m getting through it.  I’m learning more about myself, and about my illness every day.

It was 3:30-3:40 in the morning on Sunday when I was startled awake by someone pounding on the door.  I didn’t know who it was.  I only knew what time it was because I immediately looked at my phone.  Then banging got louder.  I went into panic mode, thinking either my mother finally found me, or she sent the police to come get me (she regularly threatened to call the police on me – so while not logical, it’s something that is ingrained in my head).  I don’t remember what happened after that.  What I can tell you is that somehow, I ended up in my closet, where I woke up/came back to reality/whatever you want to call it holding my blanket and my arms covered in scratches.  It was almost an hour and a half later; I heard a commotion outside.  I figured out who it was; thankfully, he was not my mother or the police.  I still felt unsafe and uneasy.  I didn’t find out until later that night that my roommate was not even home when the door-banging occurred; I was completely alone.  Thankfully some part of me had the sense to hide in the closet.

That got me thinking about what made that part of me hide in the closet.  I remember that my mother barricaded our closet doors so that we could not use them.  I always thought that was strange.  Who has closets and blocks them off completely?  Did I used to hide in there and that’s why she closed them off?  I wonder what it would have been like to have a closet.  Would I have been able to hide from her?  I’m sure she would have found me.  She always did.  Like a monster with eyes and ears all around her head, she knew where I was, what I said, what I did.  A closet wouldn’t have protected me.  That’s just silly.

Then again, it makes sense I would hide in a closet.  I still do a lot of things to protect myself that don’t really make much logical sense.  I’ve been doing them since childhood that they’ve become a part of my regular.  I always wear at least two pairs of underwear, sometimes even three pairs.  Does it make sense?  No.  That extra pair isn’t going to protect me.  But as a child, I’m sure I thought it was going to help.  I also always wear multiple layers of clothing, even in the summer, even if it makes me sweat.  Extra clothing makes me feel more protected and less vulnerable.  Maybe she won’t make me undress if it’s too much to take off.  Most embarrassing of all is my habit of stuffing myself with toilet paper.  I remember doing it as young as 8.  I thought if I could just block that whole area with toilet paper, she wouldn’t be able to touch me anymore; she wouldn’t be able to hurt me.  I created a literal barrier between her and my genitals.  It was so uncomfortable, but I wanted her to stop.  Of course it didn’t work.  She caught on.  I still did it, but not every day; only when I was feeling especially vulnerable.  Even in my adolescence and adulthood, when I had (and have) and ability to say no, I still find myself doing the same thing when I am feeling especially vulnerable or re-traumatized in some way.

As far as I’ve come, I am still very much a traumatized child living inside a traumatized adult.

Progressing in therapy

~ KJ ~ 4 Comments

I sat here debating whether “progressing” was an appropriate word to describe my experience in therapy.  I’m still not 100% sure, but I’m going to go with it anyway.

I look forward to therapy, while at the same time have some fear about what might happen.  Sometimes our sessions are an hour.  Sometimes they are a couple of hours.  You can never really tell how it will end up.  I’m still going twice a week; that won’t change any time soon.  I also e-mail my therapist between sessions to check in; sometimes she even gives me homework (I’m making a face right now just thinking about it).  But it works for us.

My therapist is amazing.  I’m pretty sure she gets me.  Sometimes she doesn’t know whether I am being genuine or sarcastic – I consider that my talent (with anyone, not just her).  But she’s really smart and knows her shit, even when it’s random shit.  I e-mailed her last night to tell her that I had eaten a potato (it had been three days since I had eaten) and she e-mailed me back this morning comparing my choice of eating a potato to Carol Rogers’ description of human actualization, in which he compared the process to that of a potato, which will strive to grow in the most unfavorable, sunless, earthless conditions; with nourishment and sunlight, in the right environment, it can become what it is meant to be.  While some people might think that was weird, I quite adore Carl Rogers and I am a psychology nerd, so I enjoy random facts like that.  It made my day.  She’s also very in tune with my needs and knows my limits.  And she gives me a hug after every session and tells me all the positive things I’m doing, even though I don’t believe all of them.

Therapy has been a little slow because I’ve had so many issues come up that we haven’t had much time to begin to process the MDSA.  Yesterday was the first time we actually started.  It wasn’t much; we watched the first part of a documentary (less than 10 minutes) and then stopped it to discuss.  Before we watched it, my therapist prepared me for how we should deal with whatever would happen.  If I needed to take a break, to tell her I needed a break.  Then she asked me if I were to dissociate, did I want her to bring me back right away or could she keep me in that state?  My mind just went blank.  I’ve spent years learning about DID and dissociative disorders.  I never once thought I would have to be making these decisions for myself.  Everything is different when it’s something you experience.

The documentary part wasn’t anything tremendously difficult.  What stood out to me the most was one of the women in the documentary saying how her mother made her out to be the crazy one.  That was just…exactly my life.  Then talking about that progressed into my use of the word crazy, and how my mother liked to use that word to describe me to everybody…and here I was using it myself.  It doesn’t make a lot of sense, does it?

I’m not entirely clear on how the rest of therapy went.  I remember my financial issues being brought up again.  I remember mentioning how I didn’t want to turn into my parents, depending on others for support.  I really don’t remember much else.  I came back from a long dissociation wrapped in a blanket, holding a stuffed lion, with my arm red and bleeding.  I don’t even know how I ended up there, or what happened while I was out.  She just told me I was hurting myself.  All I could do was apologize.  Why can’t I have happy dissociations that are all about sunshine and rainbows instead of bouts of self-destruction?  It also sucks that I can’t remember.  I just want to remember.  My therapist insists that I’m making progress and taking steps forward.  I just don’t know.  I see dissociating as a failure.  I guess I got by before because I wasn’t so acutely aware of it as I am now because now I have someone pointing it out.

I was feeling a little down about what happened in therapy.  I feel like we hugged forever because I didn’t want to let go.  As I was writing her the check, I asked what the date was (I am horrible about keeping track of the date).  When she told me, I remembered that the date was also my parents’ anniversary.  Without thinking, I said “Oh, that’s my parents’ anniversary.  I hope they die in a fire.”  I realized what came out of my mouth, but before I could feel bad about it, my therapist actually validated what I said.  She didn’t tell me what a horrible thing it was to think or say; she sort of, indirectly, agreed.  What a great feeling that was.  For once, I didn’t feel bad about wanting those evil people to die.  Unfortunately, I don’t think they died in a fire.  Yet.  There’s still time.

When I got home last night and melted into my bed, I looked at my arm where I had scratched myself hours before.  Then I realized something.  This was something I had done before.  I remember as a child, I would scratch my skin raw.  I had to go to the doctor to make sure it wasn’t a contagious disease; it wasn’t contagious…it wasn’t an obvious allergy…the doctors weren’t really sure what caused it.  It happened regularly throughout my childhood and even as a teenager and occasionally as an adult.  Sometimes I would wake up with my skin like that, so I assumed I would scratch in my sleep.  No one ever really made an issue out of it.  And now I’m sitting here wondering if there is a connection.  Could I have dissociated that young?  And why the hell would I scratch my skin off?  What is wrong with me?

Why am I so unstable?

~ KJ ~ 3 Comments

I accomplished something today.

Then it all went downhill from there.

I was sitting in a coffee shop before my therapy appointment.  I looked up from the table and noticed a vehicle parked right outside.  The vehicle was the exact same make and model of my family’s vehicle, the same color, everything.  I immediately went into panic mode, put my head down and hid behind my bag.  I closed my eyes, as if that would protect me from anyone seeing who I really was.  I started talking to myself, trying to rationalize with my logical half that the likelihood that this was in fact my family was just too small.  But my panic wouldn’t have it.

I sat there for five minutes struggling to breathe, wanting to crawl inside myself and hide.  Continuing the conversation with myself, I eventually arrived at the logical conclusion to look at the license plate.  I peeked out from my self-made protective cocoon to make out the last half of the plate, and realized that it was not the same vehicle.  Then I started to calm myself down.  I brought myself back from an episode of panic.  It may have taken some time, but I did it.

Then I went to therapy.  I was still a little shaken up from the prior incident and I told her that, but I also told her how I managed to overcome what could have turned into a disaster.  Then I talked about my incident on the bus the other day.  Then I’m not sure where the conversation went because I don’t remember much after that.

Apparently I dissociated.  I really wish I could know when the hell it’s going to happen.  I really wish I could know what happens.  I came back to my therapist sitting next to me, holding my hands and asking if I was me.  Of course I was me, who else would I be?  Then I asked her what happened.  She asked me if I remembered anything.  I didn’t.  My memory sucks in general.  I don’t even remember what I typed at the beginning of this post.  Then she told me what happened.  How the tone in my voice changed.  How she had to hold my hands down because I kept trying to hurt myself.  How I resisted her holding me.  There was clearly an angry part of me that decided to show up today.  I wish it didn’t.  Now all I feel is embarrassment over how I acted.  Part of me doesn’t even want to go back to therapy.  Then part of me is wondering what else I have done to people and I don’t even remember doing it.

There’s no more room for doubts now.  My therapist began asking about how I viewed my parts, if I had named them, etc.  I turned my head away and tried to hold back tears.  She asked me what was going through my head, and all I could say was “I don’t want to be crazy.”  I think she may forbid me from using that “c” word from now on.  I use it a lot.  She said a lot of reassuring things, but it was difficult for me to take.  She told these parts are what helped me survive. They helped keep me alive. I don’t know. This whole diagnosis is hard for me to accept.  I need time.

Five Weeks

~ KJ ~ 3 Comments

As I typed in the title of this post, I wondered when (and if) I would ever stop labeling the weeks of my life based off of the time I escaped my ‘old’ life.  I’m sure there may come a point in the future when I will be so occupied with my new life that I will no longer need to base it off of the old.  For now, I feel that each week that goes by is an accomplishment.  I came here expecting very little of myself.   I’m not even sure I expected to make it one week.  Now I’ve made it five weeks.  So what’s stopping me from making it six, seven, eight weeks?

I probably shouldn’t even be writing this blog post right now.  I have a thesis that is not writing itself.  Chapter 5 was due last Sunday while I was hospitalized and I have yet to hand it in.  Honestly, I haven’t even started it.  I’ve been so preoccupied with work, so exhausted with adjusting to a new schedule, and so many things on my mind that I just haven’t been able to sit down and focus.  It will get done today, I promise..right after I finish this post.

I can’t believe I have one more week of school left.  One. More. Week.  I have to give myself credit.  In five weeks, I have moved/escaped, got a new job, started therapy, gotten hospitalized, and still managed to write 60 pages of a thesis on a topic that I unfortunately live with every day.  And in one more week, I’ll have my 120 credits (121 actually) for my BA in Psychology.  I don’t know that many others would have been able to do what I’ve done.  I have fallen, but I’ve also gotten right back up.

In my previous post, I briefly mentioned the possibility of a DID diagnosis.  For me, it was hard to swallow.  That whole experience was hard to swallow.  I was dissociating so badly, it was out of control.  I could have been hospitalized again.  The other therapist brought up the possibility of putting me in IOP and my heart sank.  For me, I see that as a failure.  I am in no way saying those that go to IOP are failures, I am saying for me personally, it is a failure.  I want to be as normal as possible.  I want to be able to go to work every day.  I want to function.  I feel like IOP takes that away from me.

At the same time I understood where she was coming from.  I can’t put them in a position where I am a danger and it comes back on them.  They are only equipped to do so much.  I told them I didn’t want to do IOP.  I’ll do whatever it takes not to do IOP.  But to do that, I need to accept that I have a dissociative disorder and focus my treatment on that, instead of trying to cover up my symptoms and having it blow up in my face like it did in therapy on Thursday.

I think hearing those words hurt more because I knew deep down that I had a problem with dissociation.  I was familiar with DID from my courses in psychology and through meeting people with DID through trauma support groups.  I always felt that so many of the symptoms rang true for me.  But I didn’t want them to.  No one wants DID.  No one wants a lifetime of therapy, a lifetime of misunderstanding from others (although I sort of have that already).  There’s no cure.  DID won’t go away with a pill.  A lot of therapists won’t even acknowledge its existence and therefore won’t treat it.  It’s a complicated diagnosis.  It’s a complicated disorder.  I don’t need any more complications.  Why can’t life be simple?

Maybe I am just overwhelmed right now.  I’ve always wanted answers, and now that I have them, I am pushing them away because they are not the answers I want.  Why is it that now that I have escaped the horrible abuses my mother had been committing against me for so so long, that I am still being affected?  Why couldn’t everything just become normal once I left?  Why do I still have to suffer? She should be the one in the hospital (or better yet, in prison).  She should be the one in therapy trying to figure out why she does the fucked up shit she does.  She should be hurting.

Instead she’s living her life day in and day out like it’s nothing, like everything is okay.   Yet here I am, physically and emotionally in pain.  Here I am paying for therapy instead of groceries because my mind is going to kill me before hunger does.  And here I am struggling day in and day out trying to keep it together, not only for myself, but for those out there (my friends, my readers, my therapists) who are pulling for me.  This shit is backwards.

There is a part of me that is strong, that knows I can overcome anything and do great things.  Unfortunately, a lot of times, that part goes into hiding and I am left with my fearful, anxious self.  The self that doesn’t want to get out of bed.  The self that is so scared just to take a shower.  The self that fears mother is coming to hurt me.  I almost enjoy when I’m not myself because it gives me a break from living in fear for a while.  Or maybe it’s not even myself.  Maybe it’s another part of me entirely.  How do I even know?

Maybe I understand myself a little more than I like to acknowledge.