DID

YOLO

~ KJ ~ 3 Comments

I’ve wanted a tattoo for a quite a few years. Every time I planned to get one, I ended up not following through because I couldn’t settle on what to get. I wanted a Phoenix, because if it’s significance in rising from the ashes. But it would have to be a reasonably sized tattoo, and I wasn’t sure I could handle something that intricate on my first go.

I thought about getting a butterfly. Once again, for its significance and relation to growth. But butterfly tattoos had gained popularity, and I didn’t want the meaning to get lost in the hype. But I always wanted something to symbolize my freedom.

Then when I got sick, I was told tattoos were a no go. Too much risk of infection, I assume. So I didn’t think about it for awhile, until the other day. I filled out a short get-to-know-you thing out of boredom. One of the questions asked about tattoos, and I wrote no. When my friend saw it, she said we should go and get my tattoo. Admittedly, we were both overly tired and I was not in the best frame of mind. But when I thought about it the next day, I really wanted to do it.

I’ve had to avoid so many things in my life. Can’t get vaccines anymore because my body isn’t strong enough to fight them. Can’t eat high-risk foods, like raw vegetables, because any contamination can make me sick. Can’t be around anyone who may be sick.

But what’s the point if I still get sick anyway? I can’t live in a bubble. I can’t avoid everything that will hurt me. So why deprive myself of something I wanted just because it might make me sick?

Just a day before, I had gone to a buffet — Golden Corral to be exact. They don’t have those where I’m from, so I was a little excited when I saw one here. Buffets are not good for me — not only because of the higher risk of contamination, but because most of the foods there aren’t good for my GI Isaura. But I said fuck it, I want to go. And we did. And I suffered for it, as I expected. But even through the discomfort and pain, there was a sense of joy in doing something I wanted.

So I took another risk. Today, I got my first tattoo. It wasn’t anything ornate or fancy. I didn’t want to take too much of a risk.

I couldn’t think of a more meaningful tattoo. The date I ran away, and birds of freedom. It’s a constant reminder for me, in those times when I do want to give up, to remember how far I’ve come from where I was.

Three Years of Freedom

~ KJ ~ 3 Comments

My three year freedom anniversary was three days ago. I wish I could say that I celebrated it in some way, but I didn’t.

And that is not the normal for me. Ever since I ran away, I have celebrated every milestone — one year, 500 days, two years, 1,000 days. I’ve always done something symbolic, something meaningful to celebrate the day. The celebrations helped remind me of where I was, and where I came from. I know some people thought it was a bit much, but you never really understand just how important these days are unless you’ve escaped from hell. And I know many of you, unfortunately, can understand that.

But as my three year anniversary rolled around, I didn’t feel like there was anything to celebrate. Over the last few months, my life has fallen apart. I found myself homeless. And even though I found a bed in a shelter, that stay ended up damaging me even more. I wandered the streets. I slept on friends’ couches. And out of desperation, with no options left, I found myself on a bus traveling west to stay with someone I never actually met other than through online conversation.

How did I end up here? Why did I end up here? I still don’t understand what happened. I still don’t understand how, despite everything, I am ineligible for any type of assistance. If I was an alcoholic, or a drug addict, I could get help right away. In the midst of my desperation, I actually considered breaking my sobriety because I knew it was the only way I could get help. But why should I have to? It makes no sense.

I’m angry. And not just because I am homeless. Not just because my only option was to leave the state where I had everything, including my medical care, in place. I’m angry because I’m sick.

It’s not like being sick is anything new to me. I’ve been sick for awhile. But I think, in that time, there was a part of me that didn’t think it was a really big deal. Until I started getting really sick. Until that hospital stay back in May when everything took a turn for the serious. Pulmonologists, infectious disease specialists, doctors in and out of my hospital room telling me that I was very sick. This wasn’t just a cold. This wasn’t something that was going to go away. I must have answered a hundred questions as the doctors tried to figure out just how I ended up this way. It doesn’t make any sense, they’d say. Little did they know, nothing in my life has ever made much sense.

As much as I hate to admit it, I was (and still am) scared. A part of me wanted to run away from my medical problems. If I just left my doctors, left the hospital, that somehow my issues would just disappear. Until five days into my stay in another state, when I passed out at lunch and found myself at the hospital once again.

The hospital did chest x-rays just to be sure everything was okay and there was no pneumonia (as I had a massive thrush infection — completely unrelated to me passing out). The doctor walked into my room and I could see the confusion and concern on his face. There’s no pneumonia, so that’s the good news, but — before he could finish his sentence, I told him it was okay, that I knew I was sick. I realized I’m going to have to have this conversation every time I end up in the hospital. A consistent reminder that I’m sick, no matter how hard I try to pretend like I’m okay.

How is this fair? How is any of it fair? I fought so hard to get out alive and this is where I end up after three years. My mother is free. She is healthy. She doesn’t struggle.

And I am nowhere, sick and struggling.

All of the things I learned along the way have left me with nothing. The people that said they would support me have turned their backs on me. The system that says it helps those in need has left me stranded.

So what’s left to celebrate?

Shelter

~ KJ ~ Leave a comment

I am exhausted. Physically, mentally, and emotionally. Possibly the most exhausted I have ever been.

Social services found me a bed at a homeless shelter today. It’s a temporary shelter — 30 day max stay. It’s on the other side of the county, in an area I don’t really know. But it’s a bed. There wasn’t much else they could do. I don’t qualify for any assistance because I am in the small percentage of people that fall within all the loopholes of disqualifications.

I’m trying to pick up the pieces. I’m trying to catch up with all the school work I got behind in when I was hospitalized. I’m trying to figure out if I’ll ever find a stable place to live. I’m trying to figure out how I’ll pay my bills.

I hadn’t cried until today. I’ve been pretending to be strong, when inside I’ve been a mess. It finally came out when I was sitting at social services and they told me I would be going to a shelter. It finally sunk in that I was homeless and alone.

It’s really hard to see the positive in anything in times of crisis. I could totally see myself having a complete meltdown. I could see myself giving up entirely.

But I have so much support. Friends, some I’ve met and some I’ve only known online, have continued to be supportive throughout these last a several days. Phone calls and emails have helped me get through the day. People have donated money to help me with transportation and food costs. And their messages of hope and gratitude for how I’ve helped them brought me to tears.

To those that have donated and help me in any way, I am incredibly grateful. You have given me hope.

I’ve always been the person who helps everyone. It’s hard for me to be the person in need. It’s hard for me to focus on myself and not caretake for others. When I first came here to the shelter, I donated half of my clothes. Because even in the chaos of my own happenstance, I felt that I had to give back in some way.

I don’t really know what’s going to happen anymore. But all I can do is hope that this experience has some kind of deeper meaning that I just can’t see right now.

1,000 Days of Freedom, Part 5: Hopes

~ KJ ~ 6 Comments

I decided to end with something a little different from what I had done before. I had acknowledged my past and my present, so I thought it was important that I also acknowledge what I hope for in my future.

I chose sand dollars to represent my future hopes. Sand dollars are hard to come by, but when you find one, they are said to bring you good luck. Some traditions also say sand dollars symbolize peace.

I chose six sand dollars, and wrote one hope I have one each one.

To become psychologically, physically, and financially stable.

It’s been a struggle to achieve stability in any aspect. Psychologically, I’m not the best. I spend way too much of my life in therapeutic settings. I can’t take most medications, and the ones I can take don’t seem to work. They’re always telling me it’s going to take a lot of time to get better; it’s going to take a lot of time to undo 29 years of programming. Those who know my story tell me I’m doing great considering what I’ve experienced. I could have died. I guess they are right.

Physically, I know I’m never going to be 100%. My health issues are not curable. Some will get progressively worse over time. I just want to be able to feel better, to gain whatever control I can have, if that’s even possible, over my illnesses. I want to be able to stand up and walk without people being afraid I’m going to drop.

I want to be able to live with more than $1 in my bank account. I want to be able to go out without having to sell something to pay for the bus. I don’t want to be a burden on others, even if they tell me I’m not. Whether it’s financial assistance or some kind of work, I just want to be more secure and stable.

To get justice for myself and others.

I still feel responsible for leaving people behind, for leaving my mother behind so she could hurt others. I know it’s not my fault, that her actions are not my responsibility. But I long for justice. I want my mother to be punished for what she has done, for all the crimes she has committed. I want that for me, and for the other people she has hurt. I know it’s difficult to go through a trial. I know a lot of therapists don’t recommend re-traumatizing yourself for the sake of justice. But I hope one day, I can be strong enough to go through it. And if I can’t, that I can find some other way to get even just a semblance of justice.

To know my purpose in life.

I never had a chance in my first 29 years to learn who I was, to gain any sense of what my purpose was in life. Even after I ran away, I spent so much time focusing on therapy and work that I really didn’t spend enough time trying to find myself. I thought my purpose was to be a therapist and help others like me, but after the incident with my grad school that led to my removal, I lost that sense of purpose.

Perhaps it’s not about how far I can get in my education. Perhaps I don’t even need a degree to do what I was meant to do. Maybe I am meant to be a writer. Maybe I am meant to speak out about abusers like my mother.

My therapist always asks me if I’ve built a skyscraper yet. He said in one of our first sessions that I am the type of person who has the intelligence and the drive to do amazing things; he said one day, I’m going to have my own skyscraper. I have no desire to do that, but I understand what he’s saying to me. I can do things. I just have to figure out where to start.

To help others like me.

I’ve already started to do this, I think. I put myself out there when I started writing professionally, and I’ve had so many people reach out and tell me how much my writing and my honesty has helped them. I know I haven’t done much with PAFPAC lately. It’s been difficult to manage everything I am doing by myself, tired and sick. I want to do more one day, but I need to work on myself first.

To know what it’s like to live without wanting to die.

I’ve been wanting to die since I was six years old. Not a day goes by that I don’t think, even for a moment, that dying would be so much easier than living. I’m chronically suicidal to the point that it’s become normal to me. The thoughts come up at any time; some triggered by events or trauma anniversaries, but some don’t even have a reason to be there.

It’s exhausting. It’s like I’ve been fighting a battle that will never end. I just want to live without those thoughts. I don’t want to have to worry about waiting for the urges to get stronger, because I know from experience they will get stronger. I want to live a day without the weight of that on my mind. Just one day.

To accept that I’ll never know or understand why.

I think this is the most difficult hope for me, and yet the most necessary. I’ve spent years trying to figure out why my mother did what she did. I’ve read every book on sociopaths and narcissists. I’ve studied psychology and neuroscience. I’ve shared with others who have had similar experiences and I still can’t come up with a reason why. I need something to blame; for some reason, blaming her hasn’t been enough. It’s keeping me stuck.

I’ll never be able to understand why I have this life. I’ll never understand why I had to endure things that no child, no person should ever have to endure. I’ll never be able to rationalize the pain and hurt I feel every day of my life. Sometimes, there aren’t reasons. Sometimes, we will never know why. I will never know why. And that’s okay.

I will be okay.

Don’t go looking for the reasons
Don’t go asking Jesus why
We’re not meant to know the answers
They belong to the by and by

–Chris Stapleton, Broken Halos

1,000 Days of Freedom, Part 4: Help

~ KJ ~ 1 Comment

I would not be where I am, 1,000 days into freedom, without help from others in my life.

I’m fortunate to have these people in my life. They have helped me in more ways than I can really even count. Whether it’s listening to me vent, helping me with medical problems, or getting me through tough days, these people have made a huge impact on me getting this far.

I wanted to recognize them, so I got three blue starfish shells. Starfish have multiple arms to help support them. They need them in order to survive. Blue starfish also have their own unique defense system that helps them survive from predators. I found it similar to how my support system helps me defend myself from people and things that hurt me.

On one, I put the names of my parts on each arm of the starfish. I couldn’t fit all of the names of my system on one starfish, so I put them in groups. I recognized K, even in her absence; I know she did a lot for me before I even knew she existed. I acknowledged Charlie and Violet, who have come to the forefront to keep us going, even when it was hard. I thanked my younger parts, many of whom hold trauma for me and for us. Without my parts, I wouldn’t be here, and I wouldn’t be functioning as I have.

On another starfish, I put the names of the therapists and doctors who have been there for me as I struggled through PHP and IOP. I spent five days a week with them for ten or so of the last 15 months. They helped me find a stable place to live, and even though we hit a few bumps on the road, we got there. I wouldn’t have been able to do that on my own. They pushed me to make doctor’s appointments and reach out for support when I needed it. The psychiatrist worked with me through all of my medication reactions (and there were quite a few), and never seemed to give up even when I wanted to throw in the towel. The nurse was there for me through all of my medical issues; she was the first person to legitimize that what I was going through was real. She and my therapist helped me through my pregnancy and abortion, without judgment, and helped me see that I was making the right decision. My therapist sat with me and let me cry when I needed to. She told me it was okay to feel. She dealt with me when others would have given up.

I went through some of the most difficult struggles in those months, and they were there for me through it all, and helped me through the darkness when I thought I would be stuck there forever.

On the last starfish, I wrote the names of those involved most closely in my life. My therapists, both new and old. My best friend, who I’ve known for half of my life. Even though we’ve never actually met in person, she has been the voice of reason for me in a lot of situations. She also never fails to make me laugh. My friend who took me in when I was homeless, who has made sure I always have what I need, who has consistently reminded me that I am safe, and who has taught me what it’s like to experience a normal life. My online supports, who not only give me an outlet, but many were also there for me when I escaped, encouraging me not to give up and give in. The people I met through work and therapy, who have since become friends. They’ve been there for me, they’ve made me laugh and cry, and they’ve managed to deal with me quite well, as I know I can be hard to deal with sometimes.

These people are important to me, and will continue to be important to me, even if we don’t see each other. Their words and actions have impacted me in ways that will last a long time. They’ve helped me decipher the lies and discover the truth, and for that I am forever thankful.

(I did not show the names for privacy reasons)

1,000 Days of Freedom, Part 3: Truths

~ KJ ~ 1 Comment

In all this time, I’ve learned a lot of things. While I buried what I learned to be lies in the ocean, I needed to hold on to the truths that I learned.

I didn’t want to do stones; I wanted to do something different. I wanted something symbolic, something that reminded me of the place I was in. I thought about the beach. I remembered how, when I first planned out my escape, I walked along the beach and looked for sea shells. I was looking for certain ones, which were hard to find among the seemingly endless amount of shells that had washed up.

I eventually found them. I also found some really beautiful shells, completely by accident. I didn’t look for them, I just stumbled upon them in the search for my special shells. It made me think of the truths I’ve come to learn in these last 1,000 days. Some of them I went looking for; others I just stumbled upon on the way.

So I got sea shells, and wrote six of the most important truths I came to learn inside them.

I deserved to be loved and nurtured.

There is nothing — NOTHING — a child could ever do to deserve to be abused, tortured, raped, or assaulted. I didn’t do anything to warrant that. I was a child who deserved to be nurtured and taken care of, not abused and neglected. I deserved love and care, hugs and kisses, kindness and warmth. I didn’t get any of that. But I deserved to get that. I deserved to have a childhood without fear and pain. I deserved a home I could feel safe in.

I can speak the truth. She can no longer silence me.

I had no voice for years. I grew up in fear of telling people who my mother was, and telling people what was going on. I thought I was lying to protect myself, but I was really lying to protect her. I know that now. Now I can use my voice, because I am free. I will continue to speak the truth because it’s my truth to speak. I am no longer afraid to speak. I am no longer shamed to admit what has happened to me. I will not be silent.

I am a good person who deserves good things.

Even after I ran away, I lived my life for others more than I did for myself, because I still believed that I was somehow less deserving than others. I deflected compliments as if they were poison, because I believed I didn’t deserve them. I understated my achievements because I believed I didn’t truly earn them. But I’ve come to realize that I do deserve the good things — whether they be compliments, promotions, awards — even food. I am a human being. I am a good, kind, genuine person who deserves some good, as hard as that may be for me to acknowledge.

Family isn’t biological. You can make your own family, and I have.

Despite what people have said to me, even recently, my family is not the people who are genetically linked to me. My father may have been my sperm donor, but he was not my family. My mother may have given birth to me, but she is not my family. The others who never intervened, they are not my family. My family is made up of the people who support me and care for me and love me for who I am. They are there for me no matter if it’s a good day or a bad day. My family is unconditional.

I am nothing like my mother.

I’m not a sociopath. I’m not a predator. I’m not an abuser. I’m not who my mother is. I used to think that if I liked the same things as her, if I ate the same food as her, that meant that I was her. She used to change her hair to match mine. She used to take my clothes to wear them herself. People used to say how much I looked like her because she made herself to look like me. I could never separate any aspect of myself from my mother. But now I realize that physical appearance means nothing, and that shared blood doesn’t make for shared behaviors.

I can ask for help. It doesn’t mean I’m weak. It won’t get me in trouble.

I grew up never asking for anything. I never wanted to be a burden. I never wanted to be punished. I could never reach out because I knew, in the end, it would only end up getting me into more trouble. That fear carried over into my adulthood, and even after I ran away, I struggled with reaching out. There were times I needed someone to talk to, but I was too afraid to be a bother. There were times I was dissociating and needed help grounding, but I thought asking for help meant I wasn’t strong enough to do it on my own.

It’s no surprise that one of my main goals in every treatment I’ve been in — from PHP to IOP to individual therapy — has been to learn how to reach out for help. I don’t have to wait until I’m at a breaking point. I don’t have to refuse help when someone offers it. I can ask because people are willing to help me.

These truths will stay with me, as a reminder of how much I’ve learned and grown.

1,000 Days of Freedom, Part 2: The Lies

~ KJ ~ 3 Comments

I am hopeless. I will never be safe. It’s my fault I’m sick. I abandoned my family. No one will love me. No one will believe me. I was just confused. She had to rape me to save me. I am just like her. I will never get better. I am ruined. My father died because I left. I am an abuser. I deserve a gravestone.

These are the lies I believed as truth — some believed for years, others believed for decades.

I found the heaviest, blackest stones, and wrote a former belief on each one. I carried them with me to the beach this morning. I walked right up to where the ocean meets the sand. I picked one stone at a time, read it to myself, and then tossed it as far as I could into the sea. They are all there now, somewhere buried in the sand beneath the waters. They are no longer weighing on me.

I am hopeless.

I spent most of my life this way. My childhood. My adolescence. My 20s. I didn’t expect to live very long. I didn’t expect to ever get out alive. But I am still here, alive, and free. There are still times that I lose hope, but I am not hopeless. Even as I struggle in nearly every way, I keep trying to rise above. I have not given up.

I will never be safe.

It’s a hard belief to shake when you have spent most of your life without a safe place. Home was a battleground, a prison, a hell — it was never a safe place to be. Yet she taught us that it was the outside world that was dangerous.

Every aspect of my life was controlled by her. Even when I was outside of the house, I still was under her control. She was everywhere. She knew everything. There was no escaping her, until I finally did. And even then, I struggled with the fear of her coming to get me, the fear of her finding me.

I still have that fear, and it’s a valid one. There’s no doubt in my mind that she knows where I am. But I can’t live my life always in fear. I can be vigilant, and I can be proactive. The fear of her won’t go away, even in her death. But I can still embrace the small moments when I am surrounded with supports, in a secure place. It’s in those moments that I am safe.

It’s my fault I’m sick.

I put a lot of the blame for my medical issues on myself. The truth is, it’s not really my fault. Dysautonomia just happens. Ehlers Danlos is hereditary. My lung problems existed long before I started smoking, from living in a home that was environmentally unsafe. It’s not my fault. And neither is my PTSD or my DID. None of this is my fault.

I abandoned my family.

I did not abandon my family. They abandoned me a very long time ago. There was no love, no nurturing, no support provided by my mother. My father was absent emotionally. My brother was lost in his trauma early on. I never had the connection to them. Aside from DNA, they were never my family.

I ran away from my abuser; I did not abandon my family.

No one will love me.

She would tell me that so many times, especially when I was a teenager. She treated me like I was the ugliest person, constantly pointing out any flaw she could find, and making stuff up when she couldn’t. For a while, I believed she was right. I couldn’t connect with anyone, but that’s because I never learned how, and never had the right people to connect with. Now I do. Now I have people who genuinely care about me.

No one will believe me.

I spent my whole childhood believing that lie. I spent my teenage years believing it, too. And then in adulthood, when I finally came out and tried to tell people what happened, they didn’t believe me. I thought it was just like she said, that no one would understand, that no one would believe me. It turns out she was wrong. People were just blinded by their own stereotypes. They didn’t want to believe. Trust me, I didn’t want to, either. But people know the truth now. People understand because they’ve lived the same pain, too.

I was just confused.

Years ago, a social worker told me that my mother wasn’t abusing me, that she loved me and was just showing that in the best way she knew how, that I was just confusing it for abuse. It made me second-guess myself. So many moments I had to step back and ask myself if I just misunderstood what was going on. How could a mother hurt her own child? It’s inconceivable. But it’s reality. There’s no confusion about that.

She had to rape me to save me.

There could never be anything wrong with someone who would justify raping them. There was nothing ever wrong with me. It was just a lie. She wasn’t helping me. She was hurting me. She didn’t save me from anything. I needed saving from her.

I am just like her.

I know enough about sociopathy to know that there is somewhat of a genetic link. That sat in the back of my mind for a while. I thought that maybe my emotions weren’t mine — after all, I was never allowed to have them for all those years. I had to learn about them from watching videos. Maybe I just learned to copy them. Maybe I have no empathy.

But I have real emotions. Sometimes they suck, but I have them. And I have empathy. Maybe a little too much at times. I’m not a sociopath. I’m nothing like her.

I will never get better.

After 17 years of off-and-on therapy, I start to wonder if I will ever get better. Then I am quickly reminded that for most of those years, I was still living with my mother, still being abused. No amount of intervention or therapy would have helped until I was out of that situation. So, I can’t really count those years as much of anything in terms of trying to get better, because at that time, I was just struggling to survive.

It’s difficult, especially in the last 15 months (10 of which were spent in intensive outpatient therapy), to see myself getting better. Other people are able to get over their traumas and move on. Yet I’m here, fresh out of IOP, still having emotional breakdowns and flashbacks and thoughts about dying.

My therapist reminds me I’ve been through “a lot of fucking trauma”. It’s going to take time. A lot of time. It doesn’t mean it’s impossible.

I am ruined.

I used to think I gave off a vibe where people just knew — maybe they could tell by looking at me, or the way I walked, or something that let them know that I am ruined. I felt like others could sense my shame more than I could. I thought they could tell that I was dirty and worthless because of what she did to me.

But there’s no vibe, no invisible stamp on my forehead that tells others I’m somehow ruined. I’ve got damage, but I’m not ruined. I can be repaired.

My father died because I left.

My father did not die because of me, as much as my mother would like to throw that blame on me. He wasn’t heartbroken when I left; he couldn’t wait to sell all the stuff I left behind. He didn’t care I left.

My father had multiple heart attacks, strokes, and blood infections. He had a plethora of medical problems for over a decade. That’s what killed him.

I am an abuser.

I’ve written a few times over this past year about how I have been working on overcoming my fear of children, which stems back to incidents in childhood that had me believe that I was an abuser. I am not an abuser. I am not a predator. I am no longer afraid of being near children. I don’t freeze or panic when I am near them, because I know that I would never hurt them.

I deserve a gravestone.

My mother thinks I deserve a gravestone. She always said I would never get away from her. She always threatened that if I told anyone, I would get hurt. I’ve gone against her rules in the biggest ways. She’s used to being in control, and she’s not anymore.

I don’t deserve to die because I ran away. I don’t deserve a gravestone because I told the truth. I took control of my life. I did what I had to.

These are the lies I let float away.

Rock Bottom, Part 2

~ KJ ~ 9 Comments

Being hospitalized brings up such mixed emotions. In a way, it’s a relief; you get a break from life for a while. But then you realize that when you get out, life is going to be the same, if not worse. Missed school, missed exams, late bill payments. Whatever anxiety was reduced quickly comes back tenfold.

As I rode in the back of the ambulance for an hour and a half, my mind kept coming back to two things. The first, why the fuck do these people care about me? I didn’t get it. Why did my friend care enough to take time out of her day to bring me what I needed? Why did she care enough to comfort me when was scared to go? Why did the therapist care enough to wipe my tears away? Why did my therapist care enough to not give up on me? Why did my psychiatrist care enough to save me? Why won’t they just let me be? Why is it so wrong to die? What good am I to these people, to the world?

The second thing stemmed from a conversation I had with the nurse while I was waiting for transport a couple of hours prior. In our conversation, I told her about my writing work with HealthyPlace, my articles on DID. I’m normally very hesitant to share my professional work with anyone on the outside ever since it was used against me. But I trusted her, so I told her about my diagnosis and my writing.

She read through a few of my articles.  Then she stopped and asked if she could ask me a question. I told her it was okay. Then she asked me “why don’t you take your own advice?”

It took me a minute to process. I understood her point. I’ve spent the last two plus years writing about DID, sharing ways to improve communication, work with your system, ask for help. I gave people with DID hope that life could be doable. Yet I had done very little of what I had written. I was giving others hope when I myself was hopeless, telling others to do things I gave up on doing. Why? Because I was different. Because I didn’t think I was worth it. I wasn’t being realistic with myself or with anyone else, and that bothered me.

I held on to both of those thoughts throughout my entire hospital stay. People care. I matter. It probably helped me get through the hospital stay more than anything else did.

I realized early on that the hospital wasn’t the place for me. The first night when the psychiatrist did my intake, she not only made me feel guilty for leaving my brother, but she also didn’t know what DID was. Instead of explaining it, I told her to forget about it. I didn’t have to energy to fight her on anything, or to educate her on things she should have already known. I told her about my heart condition, and my need for sodium-laden fluids. She told me they didn’t do special diets there, and I’d have to deal. At that point, I was done.

The only positive of hospitalization, aside from the friends I made, was being weaned off of my heart medication. The psychiatrist I spoke to the following day agreed that the  medication can have severe side effects in rare instances, and can cause increased suicideality and worsening depression. While I had that before the medication, I certainly didn’t need anything making it more apparent. I appreciated that this psychiatrist listened to me instead of brushing me off as knowing nothing.

I did feel a little bit better once I weaned off of the medication. I was still suicidal, and still very much depressed, but I knew that staying inpatient wasn’t going to help that in any way. I had already been there a week, and it was hell. I wasn’t allowed to leave the floor because I was considered a fall risk. I couldn’t go to outside groups or go to the cafeteria for meals. It was isolating. I called my friend every night. That helped me get through. I knew she couldn’t visit because I was sent somewhere considerably far away; it hurt, but I understood it. I cried the first two nights I was there, but after that, it got easier. I learned of her son’s plan to come in an armored truck and help me break out; I halfway wished that plan was possible.

I was placed as a dual diagnosis patient — which I had to explain several times that I was there for PTSD, not for substance abuse (which, unfortunately, I just discovered they have added DD to my medical record). Most patients there were dual diagnosis — a telling sign of the opioid crisis and its aftereffects. Psychiatric facilities here now have more patients with drug or alcohol abuse than they do general psych. It definitely changes the experience, and the needs of DD patients become priority, at the expense of other patients.

They wanted me to stay longer. I knew I wouldn’t be able to do it. I was starting to get stir crazy. One of the patients had become indirectly threatening towards me. It started to feel more unsafe as the days went on. I did everything I was supposed to, so they discharged me, with an appointment the next day for intake at the program I was in before I was hospitalized.

It wasn’t as easy to come back to life as I thought it would be. I felt like a failure. I had to restart program. A program I had been in since August. I saw so many people come and go, and I was still there. And now to be there again, starting all over. Why can’t I just get over everything already? Why can’t I just be cured?

I wish I could say I climbed out of rock bottom, but I’m not sure I have.

Rock Bottom, Part 1

~ KJ ~ 6 Comments

I had managed for months to (very narrowly) avoid hospitalization. Despite the increasing suicideality, the treatment team trusted me enough to not put any of my plans into action. And I hadn’t, for those couple of months. I was honest with them, because as much as part of me wanted to die, there was another part of me that wanted even more to live.

But I wasn’t getting better. I was still an emotional clusterfuck from the abortion. My heart issues were adding to my hopelessness, and my heart medications were adding to my impulsiveness. I had no energy. I was coasting through the days on autopilot because that’s all I had it in me to do. I had no money to pay my bills. I had been living off cash advances from credit cards that were now maxed out. I reached out and asked for help — a last-ditch effort — and was turned down. It wasn’t being turned down that hurt me, but the reasons why, the denial. I should have expected it; I got the same response when I asked for help to get away from my mother. But I was desperate.

I had given up. What use was I to the world? Broke, unstable, unable to work, to contribute to the world. I was a burden. Living in my former boss’s house, eating her food, drinking her water. She had no obligation to me, yet there I was, being a burden, taking away from her family.

I was a burden to my therapist. Four months into an 8-week program and I was still in crisis. As much as she tried, she couldn’t help me. She couldn’t get through. And I couldn’t receive.

I sat in my desk that night, scribbling down on paper what I needed to say. I couldn’t quite get it all out. Everything I wrote down didn’t seem like enough. It needed to be enough. Because it was going to be the last thing I ever said.

I went into program the next day like nothing had happened. But I was withdrawn. My therapist knew something wasn’t right. I shut her down and told her everything was okay, but she still felt something was off. I couldn’t tell her she was right.

I couldn’t keep it inside very long. The next day, after some prodding, I disclosed what I had done. I knew I wasn’t going to promise my way out of it. My hopelessness had gone too far. It was too dangerous now. I was too much of a risk. I had to contract for safety that night, but I knew when I went back the next day, that there wasn’t going to be a contract.

An hour and a half into the day, and I saw my therapist come to the door. I knew it was for me. I knew what was coming.

I sat in the office, my therapist sitting at my side, my psychiatrist sitting across at his desk. I looked down and twiddled my thumbs, trying to avoid eye contact, trying not to see the look of concern on both of their faces. As soon as my psychiatrist uttered the word inpatient, I started to cry. I hated the hospital, just as much as I hated my life.

Maybe we need to consider ECT. Great. Electric shocks to your brain. That’s where my life has ended up. We had tried all the medications. We sat through all the therapy. And we ended up at ECT. A last resort.

My mind was all over the place. I had managed to stop crying long enough to look up and see that my psychiatrist had been crying as well. A man normally seemingly void of emotion. I’ve never cried for a patient before. I knew his feelings were real. I knew his concern was genuine. He wasn’t looking to punish me. He was trying to save me.

As my therapist was making calls and arranging for my medical transport, I waited with the nurse. I begged just to smoke one cigarette. I needed to calm down. I had to promise her I wouldn’t run away; and I didn’t. I had finally stopped crying. I felt okay, or at least as okay as I could be in the moment. I talked with the nurse. I told her about my DID diagnosis, and about some of my trauma history. She asked questions, and I answered honestly. I saw her facial expression change; I saw her sadness. My immediate urge was to apologize to her, yet here she was apologizing to me. You didn’t get to have a childhood. An unfortunate truth. A reality that may not have been had someone just helped me.

I sent a text to my friend to ask her if she could bring me clothes. She packed a bag with everything I needed. My favorite hoodie. My favorite pajamas. The softest t-shirts she could find. I cried when I told her what was going on. I was ashamed. I didn’t want her to be mad at me. I didn’t want to lose my home or my family. I didn’t want her to have to worry about me. I didn’t want anyone to worry.

A few hours later, the ambulance came to transport me. I hugged the therapist goodbye. Through tears, I told her I was sorry. She wiped my tears away, and assured me I had nothing to be sorry for. I hugged her again. She handed me a piece of my favorite chocolate for the road. I hugged my therapist. I saw the emotion in her face — I couldn’t tell if it was sadness or concern — but I was sorry for it. One last hug to the nurse and I was on my way, strapped to a transport bed, just like a sick person.

To know what safe is

~ KJ ~ 3 Comments

I don’t wanna be afraid
I don’t wanna run away
I don’t wanna be here fading
It’s more that I can take
I’m never gonna be the same
I threw it all away
I don’t wanna be here fading
Just let go

This song played today (Red – Let Go). And even though I’ve heard it dozens of times before, today it stuck with me in a way it hadn’t before.

I am in fear. Every day of my life, I am scared. And it’s frustrating, because I believed that once I got away, I would be safe. But I don’t feel safe.

I don’t think it matters where I live. I’ll still be afraid. Even though I have been in the safest place I have ever been in my life, I’m still just existing here, waiting for her to find me again. My heart still drops any time I get a handwritten letter in the mail. I still get anxious any time someone new follows my blog, wondering if it’s really her. Because why would she stop? She’s already done it before. She’ll do it all again and more.

I told myself I would lead a hidden life when I got out, but I didn’t. I wasn’t cautious enough. I took a job that put my name out there. Anyone who googles my name will find a plethora of work I’ve done and articles I’ve written. I’m not a nobody. I’m not hidden. I am exposed. And that scares me. If I had just stayed silent, if I had just blended in with society instead of writing and speaking out, maybe I would feel safe. Maybe.

I haven’t been writing like I used to. I haven’t published an article in over a month.  All I can think about is her reading it and finding her way back to me. All I can think about is her reading it and knowing how much she has ruined me.

I haven’t been able to sleep. I’m often awake for two or three days at a time. Severe insomnia, they say. I’ve tried everything short of a self-induced coma. But I don’t think it’s anything Medical keeping me awake. I can’t go to sleep, because I’m afraid. I keep having the same bad dream with her in it. I’m standing in line at the grocery store and there she is, in the line next to me. And I freeze. That’s as far as I get before I wake up shaking.

I don’t want to sleep, because I’m afraid to know what happens next. I don’t want to sleep, because I don’t want her to find me in my dreams. I don’t want to sleep, because I don’t want to relive her terror in my nightmares.

I can’t tell the difference between the past and the present. I know she’s not here with me, but I feel like she is. I spend my days in fear of punishment that will never come, because she’s not even here to hurt me. I hide under my bed some nights in fear that she will come into my room, yet I’m in a house that she doesn’t, has not, and will never live in. I tell myself I can’t do things, because I’m still living in a time when she makes all the rules and I need to oblige.

I am living my life in fear, wondering when I will have to run again. Wondering what threat will come next. Wondering where my mother is, because as long as she is alive, I will always be in danger.

My therapist asked me today what I thought feeling safe was like. I couldn’t answer. I’m not sure I’ve ever felt it. I’ve only known varying degrees of unsafety. 

I am tired of being afraid. I am tired of running. I am tired of this kind of life. A life ruled by fear. A life with me fading. A life being ruined by a woman who doesn’t deserve to have that power.

I just want to know what safe is.