abuse survivor

I need to pee.

~ KJ ~ 3 Comments

I made it a good three and a half minutes into my therapy session before breaking down into tears.

I was already feeling miserable. My foot was hurting so badly that I had to wear sandals, which I hate doing. I was tired. I was still angry about the doctor’s visit.

My therapist asked something about the doctor, I forgot exactly what it was. All I know is that is what started my emotional spiral.

“I hate her. I don’t need to see her again.” I turned away and started crying. My therapist sensed right away that something was wrong and gave me the box of tissues. She asked me what was going on. “Nothing,” I said, as usual. “It’s not nothing, I can see that very clearly.”

“She put COPD on my medical record. I don’t have COPD. I’m only 30. Why would she do that?”

Then I started crying even more, this time out of sadness as much as out of anger. My therapist knew about the COPD diagnosis, but didn’t really know what COPD was, or the severity of it; she’d only ever heard of the term in passing.

I told my therapist that this wasn’t the first time I heard the diagnosis, but it was the first time a doctor made it official on record. For some reason, there was something about seeing it on paper that made it sink in for me. And I hated it. I see COPD as a slow death sentence. There’s no reversing the damage. You’re basically fucked and doomed to a slow, suffocating premature death.

My therapist was doing her best to make me feel better. She said we had focused so much on preparing for how I would handle the actual visit, that we never went over how I would handle whatever medical problems may come up. She talked about how medical science is always improving and coming up with new advancements and treatments, and that a few years down the road, maybe there will be something for COPD and I could live a better life.

But I wasn’t having it. In my mind, I was envisioning a life on oxygen and a death before age 45. I spent 29 and a half years in hell only to free myself and experience a different hell altogether, for the remainder of my life.

I eventually stopped crying only to continue directing my anger at my doctor, finding other reasons to hate her. Then I started to get overwhelmed and stopped myself. My therapist asked what was going on.

“I need to pee” I said. It was true, I did need to pee, but it wasn’t why I had changed.

My therapist told me to go ahead and use the restroom. I told her no, that I would be okay. She told me again that I could go and come back and continue therapy. I said no, saying that my feet hurt and I didn’t want to get up.

“Well, you can’t pee in my couch.”

“I’m not going to. I’m fine.” This was not the first time we’ve had this battle. The humor quickly turned to seriousness. I clearly had to pee (my legs were shaking) despite my absolute denial and insistence that I was fine. My therapist asked me why this was so hard for me. I told her nothing was hard for me, that I was just fine. She asked, in a firm tone, why I couldn’t assert my needs.

I quickly responded without even thinking, shouting “because my needs don’t matter.”

And then I cried. Again. Because I realized the gravity of what I just said. And because I’m an emotional basket case. I was letting my mother’s voice overpower everything. I couldn’t have needs then. I’m still believing that now. It wasn’t about pee. It was about so much more.

On a positive note, I did eventually get up to pee. But only because I had made a horrible joke (that made both of us laugh) and ended up nearly peeing myself. When I came back, I asked if we could talk about the weather. I no longer wanted to talk about the COPD or the fuckery of my life. I just wanted to talk about the weather. She asked if we could talk about this again in the next sessions. I told her it was fine. I just need some time. It’s a lot to take in and I don’t think either of us were prepared for this.

My therapist reminded me that there are people who care about me. She cares about me, my other therapist cares about me, my coworkers care about me. The problem is me caring about me. I fall short when it comes to that, and I know that. My therapist reminded me that we all eventually die. Even if I only have 10, 15, or however many years left, I can still do great things. It doesn’t have to be a life spent in anger and bitterness. But I’m not there yet.

Let me be angry and bitter for a little.

239 Days

~ KJ ~ 2 Comments

Today is the 239th day of my freedom. 34 weeks. Nearly 8 months. I’m still alive and kicking (although sometimes, I’m kicking myself).

For anyone that assumes that life is easy once you escape a trauma…it’s not. Thanks to PTSD, I oftentimes feel like I am reliving my past over and over again. I still get panic attacks. I still have parts that think we are living back home, and are scared of our mother. I still, in some sick way, miss being home.

It’s hard for people to understand why I do the things I do. In some ways, I am still a scared child stuck in an adult body. I lock the bathroom door because I feel safe that way. I lock my bedroom door at night for the same reason. I could live in the safest neighborhood on the planet, and I would still lock the door. I sometimes hide in my closet. No one can see me in there. I still wear 3-4 shirts and three pairs of underwear (simultaneously) every day. It is a habit I have had since I was young and even though I know I am no longer in danger, it still helps me feel protected. As an adult I should know better, but it’s not that simple.

I’m exhausted. I sleep for two hours and twenty minutes each night. Then I wake up, completely disoriented and not even sure WHY I am awake. If I’m lucky, I’ll doze off a couple of times before I have to wake up for work. My exhaustion is evident. My therapist even asked if I had considered taking my Ambien again. I realized at that point it must be bad, as we both believe that I have been better sans medication (in general).

Half the time, I’m battling a migraine. My feet are causing me excruciating pain. I go to the bathroom at work sometimes just to get a break for a few minutes. I hibernate in my room at night because I can’t physically handle going up and down the stairs.

A couple of weeks ago, my therapist called countless doctors, trying to find someone experienced in dealing with trauma patients. I give her a lot of credit. She worked her ass off trying to get me care, because we both know I need it, even though I deny it a lot of the time. Fortunately, she found a doctor who is experienced and is willing to take me on as a patient. The doctor is not even in my county, but I am sort of at a desperation point. My therapist has already filled her in on some of my problems and she seemed eager to help. I have an appointment on March 21st and I’m scared as fuck. My therapist keeps telling me that I deserve not to be in pain; but pain is something I’ve known my entire life.

Me and denial have been best friends lately. I still at times find myself denying my DID. My therapist talks about my parts and I go on as if they didn’t exist. I told my therapist in our session yesterday that I just wanted to be normal. I want to have a normal childhood. I want to have a normal life. I want to feel normal. I don’t want DID.

If that wasn’t bad enough, I am denying my past. Memories come up and I discredit them. That never happened. My mother would never do that. My therapist brought up a memory that came up in our session on Monday and I told her that it wasn’t true. I denied it. I didn’t want to acknowledge something so sick, something so vile. Even though on some level, nothing my mother did, does, or will do surprises me. But it’s just so much easier to deny it. Let’s just pretend it didn’t happen. Let’s just pretend I had a happy life. Please.

But we all know that never works out that way.

Denying my memories will only make them come to the surface more. Denying my parts will only make them louder in vying for attention.

But yet here I am, on day 239, still denying most of my life.

Trust

~ KJ ~ 2 Comments

I’ve never been able to trust anyone completely.

It’s not surprising. Every survivor of child abuse I have ever met has had the same difficulty with trusting people.

Why is it so difficult for me to trust? Because the first people I met, the first people I ever formed relationships with – my parents – were also the people that abused me for my entire childhood. The very person that a child is supposed to be able to trust was the very person that shattered my ability to trust anyone.

In my healing process, I have come a long way. I have learned, to an extent, to trust other people. But I have never been able to put my full trust in anyone. There are things I keep inside, never feeling comfortable enough with anyone to let them out, never trusting anyone enough to be able to give those things a voice. And in the long run, it drains me.

I have so badly wanted to be able to trust someone enough to let everything out. And I think, just maybe, I finally found that person in my therapist.

I have been avoiding telling my therapist something that has been eating away at me. It has been eating away at me for years, really, but even more so in the recent months. I have made passive comments about it, but whenever she probed further, I said it was something that I couldn’t talk about. It came up again on Monday. I don’t remember everything because I had dissociated towards the end of our session, but it must have been significant because she brought it up again in our Thursday session.

By this time, I think she had an idea about what I was hiding. She asked if we could talk more about it. She asked if there was anything she could do to make it easier to talk about. I really wanted to say let’s forget this ever happened but on some level, I knew that wouldn’t help anyone.

My words were there but I was still so afraid to let them out. I sat there with my head down, staring at the rug beneath my feet, contemplating all of the possibilities that could come out of this. I must have told my therapist at least a dozen times that I was scared. She continued to reassure me that it was okay to be scared, that she understood. She told me that she would continue to care about me no matter what I told her, that no matter how bad I thought my secret was, we would work on managing it together. I told her that no one would understand the darkness within me. She wanted to try to understand.

After a half hour (though it seemed like hours) of inner turmoil and resistance, I finally broke down. I started crying and just blurted it out. The secret that I never told another person. The secret that I never even wrote on paper. The secret I will likely never tell another soul.

Now it was out there, out in the world, and I could never take it back.

I immediately turned away from her and hid my face. I was so disgusted with myself, so ashamed of what I had done. I couldn’t face her.

But she didn’t run away. She sat next to me, comforting me, asking me questions. I asked her if she hated me now that she knew the truth about me. I asked her if I was just like my mother.

“Your mother would never be sitting in therapy like this, feeling this intensely about anything she ever did. But you’re here, feeling all of these things because you care so deeply. You’ll never be like her.”

That still didn’t change what I had done. I still felt sick. I still felt unresolved. But in a way, I felt different. I didn’t feel weighed down. I felt like I could breathe a little deeper. I felt a release.

I realized, after our session, that my therapist is the first and only person I have complete trust in.

I never thought it would ever be possible for me to trust another human being like that.

The letter to my grandmother

~ KJ ~ 2 Comments

Grams,
I am sorry I haven’t reached out to you sooner. I had to make sure that I was safe, and that meant cutting contact with anyone who was still in contact with my immediate family.

I am safe now. I graduated from college (with high honors) and already started graduate school. I’m working at a great job, I write semi-professionally, and I recently started an organization to help others that have been through circumstances that no one should ever have to face. I am doing great things now.

I am not sure what my family has told you regarding my sudden disappearance, but I can be certain it hasn’t been the truth. I left to escape. I realized that I didn’t deserve to be controlled, hurt, taken advantage of, and abused any longer. I made the decision to leave on my own. No one made me leave. No one helped me except for a close friend. I left with two bags of clothes and shoes, my computer, and whatever money I managed to hide away. I left everything and everyone else behind.

I left because my mother is not a good person. She lies, manipulates, and controls people. She has abused her own children since childhood. She is dangerous. That is why I left. She will never change. I deserved better. R deserves better, too, but I worry that he is far too controlled to escape her.

I won’t get into too many details, because that doesn’t matter. I just want you to know the truth. My mother tries to discredit me by telling people that I am bipolar and a liar. I am neither. I have post-traumatic stress disorder, which is why I was hospitalized so many times in the past 18 months. I wanted to die because the memories of what happened to me were too painful to handle.

My mother has no genuine concern about me or why I left. She was and always has been only worried about herself. My mother sent me one text message a few days after I left. No one – not her, or my father, or Robin – has contacted me since. I have the same phone number and the same e-mail address I’ve had for the last decade. No one is blocked from contacting me.  I specifically didn’t change my number because I knew my mother would make this claim. They are lying when they say that they have tried to contact me.

I worry that they are using you to create rifts in the family, and it’s not fair. They aren’t concerned, they are using you and others to get to me. If they really needed to contact me, they would have. It’s been seven months of nothing. My mother is playing a game. Please don’t be a part of it.

You don’t have to respond to me. You don’t have to believe me. I know the truth because I have lived it. Others know the truth because they have seen it, but they are too afraid to come forward, too scared to stand against my mother. I am not afraid. She can’t hurt me anymore.

I’m sorry that it came to this. If you take anything from this, know that I am safe and well. I am healing now. I struggle every day, but I am getting by. It’s better than the life I had before. I will be okay, and I will love you regardless.

I read the letter out loud to my therapist in our session yesterday. When I finished reading and looked up, I could see the emotion written all over my therapist’s face and I immediately turned away.

She told me my strength really comes through in my writing…the same strength that I so often have difficulty finding when I need it the most. I know I am strong, but I still feel so weak.

I could have said a lot more. But what would that have done? I didn’t even mention my father’s involvement. That’s her son. I am not doing this to hurt her; I am doing this to protect her. I don’t want her to be among my mother’s countless victims.

I don’t know what I’ve gotten myself into. This can be the beginning of something. I just don’t know what that something is yet.

Don’t believe her, she’s bipolar.

~ KJ ~ 3 Comments

My mother worked hard to isolate me from the rest of the world.

She did it in childhood by instilling into me a fear of the outside. As I grew up, she isolated me by telling everyone else I was crazy and a liar.

I knew for years that she was telling people I was close to lies about me. She was telling people at my work, and people I considered my friends. It was pointless to fight against her. She had her game down pat. She would talk all of her shit about me, and then would tell a sob story about how she was so hurt by my behaviors, how she just didn’t understand why I treated her so badly, why I hated her so much.

Why I treated her so badly? Guess who was paying the bills, cooking meals for the ‘family’, and cleaning up after everyone. Me. Who bought a vehicle for her? Me. I certainly didn’t need the vehicle; I’ve never even had a license. I did all of that because that’s what she instilled in me since youth. If I didn’t support her financially, I was selfish and bad. Yet even when I did support her, she’d still tell people I was selfish and bad. I could never win.

The biggest blow came last spring, when I realized just how low my mother would go to sabotage my life. I woke up to a series of text messages from my mother. My mother allegedly thought she was texting my brother the whole time, and then conveniently realized her mistake a few texts later and then started texting me this sob story about how she was so concerned about me and blah blah blah. I say blah blah blah because that’s all it was. Lies and nonsense. I could see right through her. And I would bet my life savings that her texting me this was no accident. My brother and I have names on complete opposite sides of the alphabet. For a woman so careful in every action of her life, she would never make a mistake like that. She wanted me to read this. She wanted me to know that she was in control of everything and everyone, even the people I called friends.

My mother told everyone she met that I was bipolar, as if it were the main descriptive criterion of my entire existence. She never told anyone how intelligent I was, how selfless I was, how hard I worked…no, instead she told everyone that her daughter was crazy. Even worse, I don’t even have bipolar disorder. She liked to throw that diagnosis around because it came with all the added stigma that played perfectly into her game.

What kind of person tells everyone that their child hurts themselves as a part of regular conversation? I guess she used it to add on to my “crazy” label. But why did nobody question WHY I was hurting myself for the last 19 years? Ten year-old children don’t normally understand self-injury, and they shouldn’t comprehend that type of pain. That is a red flag that everyone just kept ignoring.

Why did nobody question why this woman’s other child, her adult son, my brother, was also hurting himself? What are the odds that a perfectly innocent parent raises two children who end up with psychological problems and extensive self-injury? If I had to hazard a guess, I would say those odds are pretty low. But damnit, my mother just played on people’s emotions like a violin. The odds never mattered because all people could focus on was my mother’s fictitious plight.

She just picks up and leaves without saying anything to anyone! Oh my God, someone call the police! I say that jokingly, but my mother would threaten to call the cops in the rare times I managed to escape from home prison for a few hours unsupervised. But why did no one see an issue with this? Why would her 29 year-old daughter need to ask permission to leave the house? THIS IS NOT NORMAL BEHAVIOR. It angers me that people did not question her at all. It really angers me. They enabled her, allowing her behavior to continue until the day I finally left.

She doesn’t want friends. Wow. I longed for friends. I never had real friends as a child. I was never allowed to spend time with anyone outside of school, and I was never allowed to have anyone over our house. I was alone my entire life. I looked forward to work because that was the only way I could have friendships. Unfortunately, that also meant my friendships were easier for my mother to control, because she had access to everyone I also had access to. I can’t imagine how many people she told these same lies to. I can’t think about all of the people I could have gotten closer to had my mother not poisoned their opinions of me with her lies. I actually had a few people come forward in the months after I left and told me similar stories – that my mother had told them I didn’t want any friends, that I didn’t like anyone, and that I thought I was too good for people. I would be lying if I said it doesn’t hurt me. It hurts me to this day.

She thinks she’s better than everyone else. That could not be farther from the truth. I still struggle with my own self-worth. My problem is I don’t think enough of myself, not that I think too much of myself. I downplay my intelligence and my abilities. I treat myself like shit often because that’s how my parents treated me. I never thought I was better than everyone else. I thought I was worthless and undeserving of life. I figured I never had any friends because I didn’t deserve them. I didn’t realize that my mother played a hand in every aspect of my life, even my potential relationships with others.

The truth is that my mother thinks she is better than everyone else. She believes that she is worthy of respect, that she is above the law, and that she deserves everything to be handed to her.

I can’t find it in my heart to delete these screenshots from my phone. The day this happened, I realized that I could trust no one. I realized that my mother had poisoned everything and everyone around me. It hurt then, and it still hurts now.

It hurts because I know my mother continues to tell lies about me, even to other members in our family. She tells people I have problems, that I make up stories. For so many years, I didn’t fight back.

Today, I have chosen to fight back. I sent a letter to my grandmother tonight. I told her why I left. I told her the truth about me. She deserves to know the truth, and not the lies my mother has continued to tell. I will not continue to be torn down by this woman any longer. I don’t deserve it.

 

Doctors

~ KJ ~ 4 Comments

I haven’t been to the doctor at all since I’ve moved here.

I’ve been avoiding doctors like the plague. I was always like that, though. I never really liked doctors. I felt like I needed to protect myself from them, and my way of protecting myself was to avoid them any way that I could.

It probably wouldn’t be that bad if I was a person in generally good health. But I’m not. I have asthma, arthritis, anemia, and malnutrition – all conditions that should be monitored regularly by a doctor. I know I need to see a doctor. I made a few half-hearted attempts to find one nearby, but the places I called were not accepting new patients, so I quickly gave up the search.

Then I received a notice from my college that my account was blocked due to missing health records. I’m not sure if I had mentioned it before, but I have no medical records, no immunization records, nothing. My mother switched doctors so much that my medical records were never complete, and I eventually lost track of them altogether. The only required vaccination to get into graduate school was the MMR, so I found a Walgreens clinic last month and paid for the vaccine with my credit card.

I didn’t realize, however, that a second MMR vaccine was required. I got so frustrated and angry because I know I had to have had these vaccinations as an infant, but because of my mother’s foolery, it is impossible for me to prove it. I looked into paying for a titer test, which would cover all vaccinations, but that cost way more than getting a second vaccine would. If I would just find a doctor, this would all be no problem. I have insurance that covers everything. But doctors. No doctors, please.

Perhaps it was because doctors and medical issues had been on my mind more than usual, I don’t know…but last week, I had a memory that eventually put things into perspective for me.

I was very sick. I had been sick for awhile, but my mother didn’t like doctors very much so I only went when required. By the time I got in to see the doctor, I was sick enough that he wanted me to be hospitalized. My mother talked with the doctor, right outside the exam room, insisting that she could take care of me at home. After enough back and forth, my mother somehow convinced the doctor to not hospitalize me. I was stabilized with breathing treatments and sent home with a bunch of supplies and medications.

And just as my mother had often done, she saw opportunity in my illness. I was a perfect target now, sick enough that I could not fight back. She abused me. Under the guise of a concerned, caring mother, she took advantage of me. And she got away with it, because she continued to do it every time I was sick, throughout my adolescence and adulthood.

At first, I didn’t really think much of this memory. I didn’t think it had a purpose. But I thought about it for a couple of days, and then I realized something. In some twisted way, I associated doctors directly with the abuse my mother inflicted on me. Doctors were not there to care for my health; doctors helped my mother hurt me. As an adult, intellectually, I know that those doctors had no idea what my mother was doing. They didn’t help her perpetrate; she did that all on her own. And as I’ve mentioned before, my mother had the amazing ability to sway people on to her side. Those doctors didn’t know what hit them.

As a child, I wouldn’t have known any better. I didn’t know the extent of my mother’s powers over people at that time. I just knew that the doctor sent me home with my mother so she could hurt me. So I associated all doctors in the same way: as my mother’s helpers.

My feelings towards doctors became less muddled as I thought more about this. This whole time, I have been unconsciously blaming doctors for my mother’s abuse. I can’t do that now. My mother has no access to my doctors anymore. I can go to a doctor without fear that I will be hurt. This was a huge realization for me.

Acting on this new insight, I gathered some more phone numbers from my insurance website and made a few calls. I found a doctor who was accepting new patients, and scheduled an appointment for the end of the month.

I told my therapist in the beginning of our session Monday about the big news. My medical issues and my hesitance to go to the doctor have been an ongoing discussion over the last several weeks, and I had regularly shot down her subtle insistence that I see a doctor. She smiled as soon as I told her I finally made an appointment. I could see that she was genuinely happy for me taking this step. I gave her my usual weird look and told her that this wasn’t that serious.

I could tell that she was holding back excitement. “I really want to celebrate, but I don’t want you to be all uncomfortable and tell me I’m weird,” she said. I told her to just let it all out. So she did. She did some version of a sitting dance in her chair and threw her arms up in celebration. All I could do was laugh.

My therapist then asked what prompted the sudden change. So I told her about the memory, and my subsequent insight and connecting of the dots. She agreed that it made sense, and was not surprised at all that I would have formed that association in the first place.

We started talking about the possible complications of seeing a new doctor. She had e-mailed me a packet of information for trauma survivors on how to handle medical situations a few weeks earlier. During today’s session, my therapist asked if it would be better if I called the doctor ahead of time to explain my trauma history and some of the things I may need. I gave her a look, and she already knew my answer. Using the phone gives me horrible anxiety, and needing to engage in a regular conversation, especially about those topics, is still not doable for me.

Then my therapist suggested a second option. She offered to call the doctor for me, to vet her and her experience with trauma patients, and find out if the doctor would be a good fit for me. If she was, then my therapist would talk to her about some of my issues -my diagnoses (physical and psychological), my triggers, things I would not want to talk about, etc. I was all on board for this. My therapist and I came up with a list of what I wanted to be included in the discussion – she would not talk about anything that I didn’t want to be disclosed.

I agreed to have the PTSD diagnosis disclosed, but not the DID; I don’t feel like most medical doctors have enough of a grasp on DID to handle that information adequately. My therapist asked if I wanted her to address my issues with eating. Since I am overweight, doctors automatically assume I need to diet and associate all of my health issues with weight. The reality is that I have lost a significant amount of weight in the last two years and I struggle with an eating disorder that often causes me to not eat enough. I know that my eating habits will need to be addressed because I have chronic malnutrition, but it would be helpful if my doctor knew my specific issues ahead of time so she doesn’t end up triggering me into starvation.

We talked about what procedures I wouldn’t be comfortable with, and what the doctor could do in case I am triggered during the appointment. It was a lot to discuss, and I ended up getting a headache halfway through our session today just thinking about it. I still have a few weeks to prepare. My therapist is going to call the doctor in the next few days, and I guess we’ll go from there. Until then, I’ll just try to deal with my anxiety about it as best I can.

 

January 30th

~ KJ ~ 3 Comments

January 30th is no longer my mother’s birthday. It is now a day for me.

I contemplated how I could turn this date into something different. Part of me wanted it to be the day my mother died; not her actual death, but her death inside of me. I wanted it to be the day I completed severed our relationship. I wanted to become an orphan. But I realized that wasn’t the right thing to do. I know I am not emotionally ready to make that full disconnection. I also know that wouldn’t be fair to my parts, some of whom are still bonded to our mother. Killing her, even though it would have been just emotionally and psychologically, would have traumatized and confused my younger parts even more. They don’t deserve that.

Another part of me wanted to send her shit (literally) in a box. But I’m not even sure she is worth the effort and the $14.95 it would have cost to ship it. I wanted to write her a letter, telling her all of the amazing things I’ve been doing. But that wouldn’t even matter. She wouldn’t care. It wasn’t worth the effort of writing or typing it out.

I didn’t know what I was going to celebrate, but I decided that morning to just roll with it. My therapist sent me a text that morning to remind me that it was MY day. So I decided I would get out of the house and see a movie. As I was walking from the bus stop that morning, I got a notification on Facebook. The PAFPAC Facebook page had reached 100 likes. Now, I am not a person that takes “likes” seriously, I never have been. But I couldn’t help but find the irony in the timing. Of all days, it happened on my mother’s birthday. My mother, the very woman that symbolizes everything I created the organization to fight against. My mother, a child abuser. My mother, a female perpetrator.

I felt a rush of emotions come over me. I actually laughed at first, because I realized the irony right away. And then I started to cry and had to dart into the nearest bathroom. It wasn’t really tears of sadness, but rather tears caused by the realization that I’m doing so much more than she had ever planned for me. I calmed myself down in time to get to the theatre, but even as I was watching the movie, my mind was bouncing back and forth with thoughts and feelings about my mother and about what I’ve done with my life.

When I came home later that afternoon, I made chocolate cupcakes. My roommate made buttercream icing from scratch and frosted them for me. And they were delicious. And I didn’t have to share them with my mother. So it was a double win.

This morning, as I was talking to my coworker about my day yesterday, I realized something that I hadn’t noticed before. I made it through yesterday completely sober. I knew it was going to be a difficult day, and I’ve always responded to difficult days in negative ways. But I didn’t drink. I didn’t turn to drugs. I didn’t hurt myself. I made it through the entire day completely unharmed, for what is likely the first time ever.

That in itself is an amazing accomplishment for me. I thought about that for the rest of the day. I thought about how I made it through that day unscathed. I thought about all of those other times that I ended up in a downward spiral into the dark place and struggled to get out. But this day was different. And that in itself made it a special day.

How my mind and body have learned to cope with trauma

~ KJ ~ 4 Comments

When you think about it, the human mind and the human body are amazing things. I’ve been thinking about this more lately, as the topic of connecting (and disconnecting) from my body have come up in therapy quite a bit lately.

I think of all the ways that my body has dealt with trauma. In response to damage in my foot, my body built bone on top of bone to strengthen what was already so weakened and damaged. When I had surgery two years ago to remove some of the excess bone, the doctors discovered a mass hidden underneath. The bones had literally formed a protective cocoon around it in a way that my doctor had never seen before.

I also have extra bone in other parts of my body, in response to fractures that were never properly treated. When they get really noticeable, I would give them names. Before it was surgically removed, I lovingly called the cluster of bone spurs on my foot “Humphrey”. As the same thing began to grow on my opposite foot, I called it “Humphrey II”. I have a palpable spur on my hip that I call Hipsley. It seems rather silly, and probably not quite normal, but it helps me not think about the damage that led to these growths in the first place.

To tackle the physical, sexual, and emotional trauma I endured as a child, my mind fractured to help me cope, leading to the development of DID. Many people don’t really understand DID, but it is truly one of the mind’s greatest coping mechanisms. It helped me get through childhood and the early part of my adulthood. It kept me alive and able to function without coming completely undone. If I never dissociated, I don’t think I would have been able to handle the trauma that had been occurring every day of my life.

Some of my mind’s and body’s coping skills are not so safe in the long run. My therapist and I have talked quite a bit over the last couple of months about my disconnection to feelings and sensations in my body. Sometimes, I can feel. Other times, I am completely numb and oblivious to any sensation.

There are times when I don’t feel hunger even when I haven’t eaten for days. There are days when I don’t feel any pain, even though I know that I have problems that should be causing me to feel pain. I also have periods when I cannot feel the temperature. It’s something that has been occurring for awhile now. It actually served me well when I was working in a warehouse in somewhat extreme weather conditions (100+ degree weather, below zero temperatures). I was able to work in the loft, where temperatures reached well over 100 degrees Fahrenheit, and not feel the heat at all. My coworkers used to joke that I didn’t even break a sweat – they were right. I wouldn’t have been able to tell the difference if it was 110 degrees or 50 degrees.

I had (and still have) the same issue with the cold. There were days where I’d go to work in a tee shirt in the middle of winter in freezing temperatures. I didn’t feel cold at all. Other people were concerned, however, because I would turn blue and red from the cold. I couldn’t feel a thing – cold or hot. I just didn’t feel. I still have this problem. Last week, I was waiting outside of my work for the manager to come. A coworker said I could wait in his car to stay out of the cold. I told him it wasn’t cold and that I was okay. Except that the temperature actually was cold. It was 12 degrees outside, and I was wearing a hoodie. But I felt fine, because I couldn’t feel anything.

I had an incident several years ago while cooking. I leaned over the front burner, forgetting that it was on (I was reaching for something in the cabinet above). As I was fiddling about in the cabinet, I heard someone shout, “move, you’re burning!” I didn’t really understand what was going on because I hadn’t put anything in the pot yet. Then I looked down and realized my shirt was burning. I quickly patted out the fire. My shirt was completely ruined, half of it had disintegrated from the burning. I had a coil-shaped burn across my abdomen. And I didn’t even know it was happening. I was so disconnected, I didn’t even realize I was burning.

It may seem like not being able to feel is a great thing. I assure you, in the long run, it’s not good at all. I try to make an effort and check the weather and dress appropriately, even though I may not feel the temperature at all. I’m always afraid of overheating in the summer, because I’m not connected with my body enough to know when it’s reaching a danger point. When I broke my foot a few months back, my mind blocked out the pain and I was able to walk on it, even though I shouldn’t have been. I ended up causing even more damage. I’d rather not accidentally set myself on fire again.

For the last six months, I have been experiencing pain off and on in my tailbone. I appreciated the days that I was able to block out the pain completely and move around like nothing was wrong. Some days, I can’t block the pain and I feel it intensely. I use those days when I can’t feel pain to rationalize that nothing is wrong with me on the days when all I feel is pain. I feel like if I were to go a doctor and tell them that I feel great some days, and horrible other days, that they would minimize the pain just as I do. Doctors won’t understand that cutting myself off from feeling is how I have learned to cope with trauma.

My therapist suggested that my disconnection from feeling is related to my history of trauma. I am so used to it, that I never really thought about the reasons why I am that way. It makes sense. I just wish there was an easy fix. As much as I’d like to not feel anything, I also need to eat like a normal person, to fully experience my environment, and to feel when something is wrong with my body. Right now, I can’t do that fully. It is something I need to work on, along with the 8 million other issues I have thanks to life.

The ongoing battle: Why I deny my DID and why I know that I have it

~ KJ ~ 2 Comments

I’d like to think that, as I am now six months into my official dissociative identity disorder diagnosis, I wouldn’t still be struggling with accepting that I have DID. But the truth is that I still have doubts. Some mornings I wake up in complete denial. I try to rationalize my denial my pointing out the differences between myself and others with DID I’ve come across, even though I know full well that the dissociative spectrum is so diverse that no one’s DID is the same as another person’s. Yet I still try to convince myself that this all just a misunderstanding.

Reasons I use to tell myself I don’t have DID (note that I am not saying any of this is true for all people with DID – these are my irrational rationalizations):

Medication: I am not taking any psychotropic medications, and I haven’t since September. Every person I’ve ever come across with DID (and mental illness in general) takes at LEAST one psychotropic medication. I tell myself that since I am functioning without medication, I must not be ill at all.

Functioning: I function decently well. I’ve held jobs (and excelled at them), I’ve always been one of the highest achievers in my class (from elementary school through college), and I am able to live independently without assistance from anyone. I know many others with DID are not that fortunate. They are unable to hold jobs, unable to focus or stay present long enough to manage an education, and many are in supportive living.

No inner world: In my reading and through my participation in DID support groups, I’ve come across so many people speak of an inner world that they can actually picture inside of their minds – filled with different rooms and places for alters to go. I don’t have that. I find it difficult to imagine having that.

Trauma: This is difficult for to me admit, as I would tell a client to never compare his or her pain to another person’s. Yet I find myself regularly comparing my trauma to other people’s traumas, insisting that my experiences are minor in comparison to what other people have gone through. I tell myself I don’t have DID because what I went through just wasn’t that bad.

Lack of alter involvement: I realize in typing this out that it is one big oxymoron, because admitting that my alters exist actually supports my DID diagnosis. Many of my DID friends have actively participating alters: alters that use the computer and social media as themselves, alters that perform certain life tasks, etc. None of my alters use the computer (that I know of). None of them have their own accounts. As far as I’ve realized, I’m the one putting the work into daily tasks, not any of my alters.

Memory: Although I don’t remember everything, I do have memories of quite a few traumatic experiences I have endured. I tell myself that if I really had DID, I would have dissociated during these events and blocked them out from my memory. Why didn’t I dissociate all of the time?

Reasons I use to counteract my denial:

Medication: Funny how I use this both as a tool for denial and a tool for acceptance. The fact that psychotropic medications don’t affect me actually supports a dissociative diagnosis. DID cannot be treated with medication. The symptoms that may coincide, such as depression and anxiety, can be treated with medication, but DID itself must be treated through therapy. It explains why anti-depressants never helped me, and why even the strongest anti-psychotics never stopped the voices in my head.

Outsiders have met my insiders: When I told a good friend about my DID, there was no sense of shock or surprise. In fact, my friend had suspected something long before I even realized it. When I asked why he never said anything to me, he said it didn’t matter to him – it was just who I was. I even found out he had met one of my younger parts. My therapist has also met several of my parts, even before they were comfortable enough to come out to me.

Recognizing differences: Two weeks ago, I had a disagreement with a coworker. We were discussing an issue with boxes that needed to be shipped out, and I insisted that I didn’t pack and label the boxes. I couldn’t recognize my own handwriting. As I stood there vehemently denying that these boxes were mine, my coworker reminded me that I was the only one who knew how to do it, and no one else would have written those labels out. He was right. It could have only been me. But that was not my handwriting. Someone else had taken over for me, and it wasn’t the first time. Over the years, I have come across many notes that were not in my usual handwriting, but I knew that they must have been written by me. These differences are never subtle, either.

Ending up with things I don’t remember buying (or liking): I’ve been known to carry around a pink and white polka dot bookbag. My therapist commented on it once, and I mentioned how I hated the color pink. And then she asked me why I had a pink bag. Truthfully, I don’t even remember buying it. I don’t remember buying a lot of things I end up with.

The voices in my head: I can’t ignore it. Hearing voices is not normal. Yet I’ve heard them for years. Sometimes I can understand what they are saying, and sometimes I can’t. Medication doesn’t make them go away because they are parts of me. They are not auditory hallucinations. They are my alters.

Memories: There are entire chunks of my life missing from my memory. Sometimes I can’t remember what I did last week or what happened in therapy. These are clear indications of dissociation. When I am present, my memory is exceptional. There is no other reason for my memory to be that shitty, even with the drugs and alcohol I’ve taken in the past.

Trauma: This is another dual-purpose tool for both denial and acceptance. I know through my research and involvement with other survivors of mother-daughter sexual abuse that the incidence of DID seems to be much higher with survivors of this type of abuse, so inevitably my risk is higher. I also endured physical, sexual, emotional, and psychological abuse by both of my parents, increasing my risk factor for developing DID even more. As much as I don’t want to admit it, I had a traumatic childhood and early adulthood. Saying that my life was fine won’t change the fact that it really wasn’t.

As I sat in therapy last week and insisted that I never went through any trauma, my therapist reminded me that that just wasn’t the truth. She told me that if I continued to deny my experiences, I was also denying everything that my parts went through, all of the trauma they endured. It’s not just about me; it’s about them, too. I realized that I was doing the same thing to my parts that other people had done to me: denying the reality of my/our experiences.

Sure, I wish I didn’t have DID. No one wants DID and all of the shit it comes with. But for every reason I come up with to support my denial, there are even more reasons that support my diagnosis. I can try to maintain my dissonance, but that will never work in the long run. Maybe one day I won’t have to fight myself anymore on this issue. We’ve done enough fighting already.

Silenced in shame

~ KJ ~ 6 Comments

I tend to be a very open person. I tell my therapist nearly everything on my mind and in my heart, good and bad, happy and sad. I’ve shared my thoughts and experiences with others by writing this blog.

But something came about last week that I could not talk or write about. The memories left me confused, angry, and ashamed. I hated myself. I hated the world. And I couldn’t tell anyone about it because I feared that would only make it worse.

When I went to my therapy session on Thursday, I tried to deflect talking about everything I was feeling by denying everything. And by everything, I mean everything. I told my therapist I had a good life, no trauma, and no problems. I didn’t want to deal with any of this shit anymore. But denying it doesn’t make it go away. I could’ve said I had a good life until I was blue in the face, but it wouldn’t have changed the fact that I was seething on the inside.

I finally admitted to my therapist that I was full of anger, but I could not tell her why. It’s not that I didn’t know; it’s that I didn’t want to talk about it. She traced back the last few days trying to pinpoint when and where my feelings originated. I went over each minor detail of my life starting with Thursday morning and working backwards. Eventually I muttered “I checked Facebook.” That was when it all began.

I didn’t expect to feel anything when I checked Facebook that time. Then, I read a status that came up in my Facebook memories from six years ago about being admitted to the hospital. I instantly realized what happened in the days after I wrote that status. I felt as if I were right back in 2010, going through it all again.

My therapist asked me what happened and I burst into tears. All of emotions came pouring out and I couldn’t stop crying. I couldn’t even tell her all that happened. I told her that I cried for help and no one helped me. No one knew what had just gone on just minutes before the nurse came in my room. No one could translate my cries of desperation. No one could feel the pain I was in, the disgust and shame I was filled with. No one. I was completely helpless. I was entirely ashamed.

I remember laying in my hospital bed day after day just wanting to go. I couldn’t even eat. The numerous visits from nutritionists could not take away the sickness that was eating away at me from the inside. I was so disgusted with myself. I felt so unclean. I couldn’t shower for weeks, which only magnified how gross I felt. I wanted to scrub away the dirty. But no shower would have been enough. Nothing would have been enough.

It was at that point, after that incident, that I realized that nothing would ever stop my mother. She was sick; sicker than I had ever imagined. In my most helpless state, she took complete advantage of me, all the while putting on an Academy award-worthy performance of a concerned mother. No one knew how badly I needed to be protected from her. Instead, they inadvertently helped her terrorize me. I was completely alone. Despite the numerous flowers and gifts, and visits from coworkers and friends, I felt isolated and alone. Physically, my heart was trying to give out on me. Emotionally, my heart was already dead.

Despite my realization that my mother was (and still is) sick, I blame myself for what happened. I could have told her to stop. I could have gotten away. I could have told the nurses. But I didn’t do any of that. I let it happen. That’s all I could tell my therapist. I let it happen. As if I could have done anything to stop her. I had an oxygen mask, a heart monitor, and numerous IVs, but yet I expected myself to, in some way, fight back or resist; something I had never done before when I was in much better physical condition.

My therapist reassured me that there was no way I could have stopped her. I did what I could in that moment. It wasn’t my fault. But part of me was still angry. Part of me was still disgusted and ashamed. I left session that day wanting to destroy the world. All of that anger I was holding on to for so long was trying to get out.

But I couldn’t direct it at my mother. So I directed it at the branches I passed by on my walk home; the branches I ripped out from the bushes and broke into pieces, much in the same way I felt my heart had been ripped out and broken into pieces. I smoked, but not even 100 cigarettes wouldn’t calm me down. I drank, but no amount of alcohol would wash away my disgust.

It was only in today’s session, nearly a week after my memories and feelings resurfaced, that I was able to tell my therapist a piece of what happened to me that day. I still find myself overwhelmed with shame. I still fear that other people would not understand. I still fear that other people would think it was my fault. My therapist asked if there was anything she could do to lessen the shame. But I don’t know. As much as I know I need to talk about it, I can’t. Not even to the person I trust the most. I remained silenced in shame.